honey & vinegar media on instagram
@honeyandvinegar_
  • 10 likes
  • 1 comments

hey cuties! for those of you dying for some more @honeyandvinegar_, we’ll be at @housewineaustin with @parlorbeautybar from 7:30-10:30 tonight! AND THERE IS A SPECIAL DRINK FOR EACH COLOR. This is not a drill 💄🍷 this is one of the only places that has some left in stock so come and gitcha some!

Miriam Piper media on instagram
@the_other_andrews_sister
  • 7 likes
  • 0 comments

Easy life, tricky moments. Now my life is easy in comparison to many. I have a roof over my head, even if it’s cold inside. I have a world class blood glucose monitor, even if I have to wait 5 minutes for it and I have free life saving medication, even if I have a lifetime of illnesses. I have an easy life, just a few tricky moments. #easylife #thankful #diabetes #type1diabetes #accuchek #avivaexpert @accu_chek_dk #trickymoments #chronicillness #chronicillnessawareness #nhslover #nhs #freehealthcareforlife

The Every Endo | Alexandra media on instagram
@theeveryendo
  • 42 likes
  • 0 comments

SELF 🌻 The whole ‘but you don’t look sick’ time makes me put in that extra bit of effort into my appearance just to make me feel a bit happier and more like myself. Even if it is just the liner and concealer or a full face of glammy make up, it all helps a little bit! Jazzy hoop earrings for 50p from Primark help too 🥳. 💛 . #endometriosisawareness #endometriosis #endosisterhood #endo #endowarrior #chronicpain #chronicillness #chronicillnesswarrior #chronicillnessawareness #pcos #polycysticovariansyndrome #womenshealth #health #chronicfatigue #chronicpain #chronicpainawareness #chronicpainwarrior #healthproblems #mentalhealth #mentalhealthawareness #amitriptyline #codeine #medicine #tramadol #blog #blogpost #blogger #healthblogger #positivevibes #positivemindset

chronic illness memes media on instagram
@memesforthechronicallyill
  • 12 likes
  • 1 comments

honestly....yea

 media on instagram
@jewel._.777
  • 9 likes
  • 0 comments

This one is perfect for me and my M.E.! If I don't try and laugh at myself sometimes😂, I will get so frustrated with myself and become overwhelmed 😭. My family is supportive and keeps reminding me that it's okay. It's not my fault. It's the M.E. I just need to learn to continue to accept it and stop apologizing for it. #stickmancommunications (credit for key card) • #chronicillnesswarrior #mecfs #chronicillnesslife #cfsme #meaction #millionsmissingcanada #chronicillnessawareness #chronicillnessquotes #millionsmissing #chronicillness #invisibleillness #chronicfatigue #myalgicencephalomyelitis #chronicillnessproblems #chronicillnesssupport #chronicillnessfighter #chronicillnesssucks #chronicillnesscommunity @meawarenesspictures #chronicillnessfighter #chronicillnesssurvivor @solve_cfs @meawarenesspictures @bateman_horne_center #canyouseemenow

Sam's Boxes of Sunshine ☀️ media on instagram
@boxesofsamshine
  • 40 likes
  • 1 comments

ALL US PACKAGES HAVE BEEN SENT OUT YAY! That is 18 boxes 🤩💕☀️ Hopefully international packages and applications will be open soon! Fingers crossed 🦓💪🏼 #ehlersdanlosawareness #chronicillnessawareness #chronicpainwarrior #chronicillnesswarrior #eds #ceds #veds #heds #pots #posturalorthostatictachycardiasyndrome #fibromyalgia #cancer #pain #packages #carepackages #donate #paypal #pandas ##chronicfatigue #chronicillness #chronic

CoachArt media on instagram
@coachartorg
  • 22 likes
  • 1 comments

“Giving back is ALWAYS is style.” Shoutout to our friends at #patsnap who were featured by @builtinla as 1 of 5 #latech companies giving back to the community. ❤️🧡 Special thank you to the PatSnap team for volunteering with CoachArt kids impacted by chronic illness. 📸 PatSnap team as featured in #builtinla. 👆Swipe Up on our story to read the full article, “’Tis the season: How these 5 LA tech companies give back.” . . . . #coachart #givingbacktothecommunity #givingbackfeelsgood #childhoodchronicillness #artsandathletics #makingadifference #nonprofitorganization #mentoringmatters #coacheschangelives

 media on instagram
@jewel._.777
  • 5 likes
  • 0 comments

Raising ME CFS awareness! This is an online store I found that sells different types of badges and key card's for different disabilities/illnesses amongst other things. I am considering trying this out, has anyone heard of or bought from this online store? Let me know! 💙🤓 It seems like a great idea instead of always having to explain it to people you know or meet. • www.stickmancommunications.co.uk #stickmancommunications#chronicillnesswarrior #mecfs #chronicillnesslife #cfsme #meaction #millionsmissingcanada #chronicillnessawareness #chronicillnessquotes #millionsmissing #chronicillness #invisibleillness #chronicfatigue #myalgicencephalomyelitis #chronicillnessproblems #chronicillnesssupport #chronicillnessfighter #chronicillnesssucks #chronicillnesscommunity @meawarenesspictures #chronicillnessfighter #chronicillnesssurvivor @solve_cfs @meawarenesspictures @bateman_horne_center #canyouseemenow

 media on instagram
@jewel._.777
  • 16 likes
  • 3 comments

Sensory overload, a symptom of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome). This is one of the many symptoms, that comes with ME CFS, that I personally struggle with the most. #stickmancommunications • • PRODUCTS SOLD & Credit for photo to...Link...http://stickmancommunications.co.uk/ #stickmancommunications • • #chronicillnesswarrior #mecfs #chronicillnesslife #cfsme #meaction #millionsmissingcanada #chronicillnessawareness #chronicillnessquotes #millionsmissing #chronicillness #invisibleillness #chronicfatigue #myalgicencephalomyelitis #chronicillnessproblems #chronicillnesssupport #chronicillnessfighter #chronicillnesssucks #chronicillnesscommunity @meawarenesspictures #chronicillnessfighter #chronicillnesssurvivor @solve_cfs @meawarenesspictures @bateman_horne_center #canyouseemenow

Mystic River media on instagram
@mysticrivermountaincreations
  • 11 likes
  • 0 comments

By far my favorite go to Mac and cheese. @annieshomegrown is so creamy and tastes just like the real thing!! I can’t tell the difference. . . . . . . . #anniesveganmacncheese #chronicillnessawareness #chronicallyill #whatveganseat #whatveganscook #yummyfood #annieshomegrownorganic #annieshomegrown #saturday #veganlunch

Nicole Eloise 🍂🌈💕 media on instagram
@iamnicolebrooks
  • 33 likes
  • 1 comments

📷 originally @positively_chronic + seen on @thechroniccommunity ❤️ Found this so relevant because I’ve been doubting my diagnosis recently, but once you’ve been diagnosed with Fibro Doctors put EVERY symptom down to it 🙄 All the stress of yesterday along with the lack of sleep has completely messed my body up. I’ve spent most of the day in bed, and now I’m doing some writing. All I want is a pain free Christmas but it’s looking unlikely, just like my birthday was 😞 I hope you all had a good Saturday babes ❤️❤️❤️ #chronicillness #chronicillnesswarrior #chronicillnessawareness #chronicillnessmemes #chronicillnessproblems #chronicillnesslife #chronicillnessblogger #doctorsaredickheads #chronicpain #chronicpainwarrior #chronicpainawareness #chronicpainsucks #invisibleillness #invisibleillnessawareness #invisibleillnesswarrior #invisibledisability #chronicfatigue #myalgicencephalomyelitis #fibromyalgia #fibromyalgiawarrior #fibromyalgiaawareness #fibromyalgiafighter #fibromyalgiasucks #flareup #spoonie #potd #meme

AMBERLY LAGO media on instagram
@amberlylagomotivation
  • 1.3k likes
  • 154 comments

Don’t give up before the miracle.⁣ You will heal.⁣ It just takes time.⁣ All that pain you are feeling is nothing compared to the the warrior you become.⁣ ⁣ Things I know about healing:⁣ Speaking kindly to yourself helps....A LOT!⁣ ⁣ Sometimes your inner voice forgets that you are worthy of self-compassion, pointing out all the reasons where you went wrong or why you don’t deserve something. Don’t let that fool you. Dig deeper. Get gritty and you will hear another voice leading you to the truth—that YOU are a Divine human being.⁣ ⁣ When I was in the hospital for months at a time I never dreamed that one day I would write a book! Actually, some days even as I was writing my book, I had many moments of self doubt and my negative voice got loud. But what I did know was that there was a reason for every moment in my journey, even the most painful ones. I held on to hope that something beautiful would come out of the brokenness I felt. Something beautiful is the community I have found with YOU.⁣ ⁣ There is nothing stronger than the human spirit and the power of community. If you are struggling, just know that your resilience is inside you and stronger than any setback. ⁣ Keep going. #strongertogether ⁣ 📸 @stylewithkat⁣ ⁣ ⁣ ⁣ #resilience #dontgiveup #miracles #inspirationalquotes #recoveryjourney #crps #chronicpain #crpswarrior #spoonielife #chronicpainwarrior #chronicillness #invisibleillness #chronicillnessawareness #healing #heal #innerhealing #healingvibes #emotionalhealing #manifest #godsgrace #grit #truegritandgrace #compassion

Amanda media on instagram
@mandajaneisthename
  • 19 likes
  • 0 comments

We all compare on these #highlightreels 🎥 ・・・ Don’t let someone or something on the internet rush you into anything. Just because someone else where got back to a job quicker or feels “normal “ or recovered faster than you, doesn’t mean that you’re failing....Taking things at your own speed, whatever that speed may be is valid and correct if it’s perfect for you.💛 @theeveryendo #endometriosisawareness #endometriosis #chronicillness #chronicillnessawareness #womenshealth #health #mentalhealth #positivemindset

Brains&BodiesBlog media on instagram
@brainsandbodiesblog
  • 16 likes
  • 0 comments

So overwhelmed with the support from my family , friends and blog readers for helping me raise so many art materials to make pieces to sell for E.D.S Support U.K in under 3 weeks! I only require 2 more things really at the top of my list which you can access from the link in my bio - if you still kindly want to help me. I have used Amazon smile from my Go Fund me Donations to ensure @ehlersdanlosuk receives 0.5% of the total net order cost to which is amazing. This is a great way to donate to charity whilst buying things you need, with no extra cost and there are so many charities to choose from. I have to wait until the middle of January to start receiving everything then all systems go and I will start making things to share with you all for when I am ready to open up a shop ————————————————— #ehlersdanlossyndrome #ehlersdanlosawareness #ehlersdanlossyndromes #charity #charityfundraiser #charityfund #charityfundraising #fundraisingforcharity #ehlersdanlostype3 #ehlersdanlossociety #hypermobilitysyndrome #chronicillnessawareness #medicalzebra #medicalzebras #heds #edslife #ehlersdanloslife #spoonielife #charitywork #chronicillness #chronicillnesswarriors #zebrastrong #chronicillnessblogger #chronicillnessblog #chronicillnessblogs #chronicpain #ehlersdanlossyndrom #ehlersdanlosuk #invisibleillness

Bearded chronicles media on instagram
@mercurialandmedicated
  • 16 likes
  • 0 comments

Party number one done this weekend. Lovely afternoon with the family. It was successful for me cuz I was able to enjoy the party without my brain ruining it. A bit of effort and positive thinking went a long way #mentalhealth #mentalhealthawareness #mentalhealthwarrior #bipolar #bipolardisorder #health #wellness #chronicillness #chronicillnessawareness #autoimmunewarrior #autoimmunedisease ##addisonsdisease #adrenalinsufficiency #invisableillness #beard #beardsofinstagram #beardlife #instabeard #tattoo #tattooed #instatattoo #christmas #christmastshirt

Morgan Isabella Shaw media on instagram
@morganshaw380
  • 16 likes
  • 0 comments

So overwhelmed with the support from my family , friends and blog readers for helping me raise so many art materials to make pieces to sell for E.D.S Support U.K in under 3 weeks! I only require 2 more things really at the top of my list which you can access from the link in my bio - if you still kindly want to help me. I have used Amazon smile from my Go Fund me Donations to ensure @ehlersdanlosuk receives 0.5% of the total net order cost to which is amazing. This is a great way to donate to charity whilst buying things you need, with no extra cost and there are so many charities to choose from. I have to wait until the middle of January to start receiving everything then all systems go and I will start making things to share with you all for when I am ready to open up a shop ————————————————— #ehlersdanlossyndrome #ehlersdanlosawareness #ehlersdanlossyndromes #charity #charityfundraiser #charityfund #charityfundraising #fundraisingforcharity #ehlersdanlostype3 #ehlersdanlossociety #hypermobilitysyndrome #chronicillnessawareness #medicalzebra #medicalzebras #heds #edslife #ehlersdanloslife #spoonielife #charitywork #chronicillness #chronicillnesswarriors #zebrastrong #chronicillnessblogger #chronicillnessblog #chronicillnessblogs #chronicpain #ehlersdanlossyndrom #ehlersdanlosuk #invisibleillness

Kenny media on instagram
@getting_back_on_my_feet
  • 20 likes
  • 4 comments

I no longer have to worry about this for I’ve made the choice to cut my parents off since they no longer care. In our lives every once of energy must be used wisely. Energy can not be wasted on those who do not truly care about your wellbeing. For years I’ve gone back and forth with my parents speaking. It always been over the exact same things their inability to look at their kids illnesses not just their own. I’ve tried I’ve bent over backwards for them, I’ve set feelings aside and I’ve been there for them for everything for 42 years. It’s just come to the point now that they are beyond toxic to my life and it’s making my health worse. These so called parents have left me to lay in a hospital with out visiting, never lend a true hand when it’s needed, put others before their own kids and just always knock down your illnesses pain and suffering to talk about their own or someone’s else’s. For that reason and others I’ve had to make that painful choice to cut them off in hopes that less stress equals greater happiness for me and my health. Sucks but there comes a point you have to draw a line in the sand and I’m there..... . I am blessed to have a wonderfully supportive wife, her parents who I consider mom and dad, her brother who is my only “true” brother in my life (I have step siblings but we don’t associate) & his daughter who are my real family. They have our backs if we need it and are truly compassionate about ones medical issues. They’ve been there for us for anything thru all this & continue to be. Add to them a few close friends we have who would be here if we need and I think I’ll be alright getting by. Have any of you had to cut off family over toxic family relationships that are effecting your health? If so how’d it work out for you? The tough part for me is my parents live two doors away so we see each other almost daily in passing and more so I’m the warmer seasons. They moved here 8 years ago while my wife & I have been in our own home here for 15 years. Hopefully they’ll sell their house and move as they keep threatening us with, lord that would make this all so much easier. . . Just needed to vent.

@sendingspoons_
  • 28 likes
  • 1 comments

The newest addition to our 2019 boxes. These are the cutest hand made studs I’ve ever seen. And this company supports chronic illness warriors, which is always an added bonus. You don’t want to miss out on your box that comes with @funkytimecrafts. Orders placed before Thursday will make it before Christmas 🎄 #sendingspoonsbox #chronicillness #chronicsubscription #spoonie #spoontheory #youdontlooksick #invisibleillness #chronicillnesswarrior #spoonie #chroniclyillkid #sickkids #chronicallyfabulous #chronicillnessawareness #sendingspoons #sendingspoonschronicillnesssubscriptionbox

Anna King Kowlessar media on instagram
@annakingskywalker
  • 76 likes
  • 1 comments

Just one of the sweet memories that’s now tucked into my 2018 journal. I’m so grateful for all the memories this year held. There were plenty of bad things and mishaps and disappointments, but there’s something really beautiful about writing honestly about all of it, and then memorializing the stuff you’re grateful for, the way you overcame your challenges, the things you learned. (And also I just love my mom and this was a fun excuse to post this)!

The Klein Family media on instagram
@thesaltykleins
  • 23 likes
  • 3 comments

Chronic Illness is hard. It’s missed plans, disappointments, and flexibility. It’s being blessed with friends who stick with you, and being disappointed by family who don’t. It’s reminding yourself that it could be worse, and that there is always tomorrow. #chronicillnesslife #raisingteens #cysticfibrosis #cysticfibrosisawareness #asthma #vocalcorddysfunction #specialneedssiblings #specialneedsfamily #chronicillness #chronicillnessawareness #sickday #sinusitis #chronicsinusitis #coldseason #family #friends #friendgoals #blessings #disappointment

Mystic River media on instagram
@mysticrivermountaincreations
  • 5 likes
  • 0 comments

Steel cut oats for a healthy breakfast this morning. . . . . . . . . #vegan #whatveganseat #yummyfood #yummyveganfood #chronicillnessawareness #chronicallyill #spoonielife

Lauren Tugwell media on instagram
@endobunny
  • 38 likes
  • 5 comments

The pain has been summin’ else today 😖😔 yesterday felt like a bit of progress had been made but then WHAM - woke up this morning to this 🤒 it’s not just the pain though, I feel like I’m coming down with a cold 😫 #blog #blogger #support #community #chronicillness #chronicillnessawareness #invisibleillness #invisibleillnessawareness #butyoudontlooksick #spoonie #endometriosis #endo #endosister #endowarrior #endosisters #endowarriors #adenomyosis #adeno #adenosister #adenowarrior #adenosisters #adenowarriors #mecfs #chronicfatigue #myalgicencephalomyelitis #interstitialcystitis #bladderpainsyndrome #pcos #polycysticovariessyndrome #chronicpain

People Hope media on instagram
@peoplehopeorg
  • 69 likes
  • 23 comments

Who’s signed up for the Focus Fix?! ⬇️⬇️Drop a 👍 below!!!⬇️⬇️ There’s still time to sign up and get in on…well…everything! . ✔️The world’s most encouraging welcome message from author, Anna Kowlessar! . ✔️Our FREE exclusive 2019 calendar with checkboxes to go along with each month’s practice! . ✔️12 Monthly Emails with that month’s focus theme, and a challenging thought from your pal, Anna! . ✔️12 Worksheets filled with practical tools and strategies to help you ask yourself “The Tough Questions!” . ✔️12 FREE Quote Cards for you to post on your social media to help encourage your friends! . ✔️1 End-of-Year wrap up worksheet to help you close out 2019 with as much intention as you start! . 📲peoplehope.org/focusfix

Chris Logan media on instagram
@clogan6039
  • 43 likes
  • 4 comments

Like so many, I was told that I had anxiety until I finally found the right doctor👩🏼‍⚕️ Don’t give up, there are good ones out there❤️#autonomist  #ehlersdanlos#dysautonomia #dysautonomiaproject#invisibleillness #invisibledisease #spoonie#spoonies #spoonieproblems #spoonielife#potsie #potssyndrome #gastroparesis#thefreylife #feedingtube #tubie#chronicillness #chronicillnesswarrior#chronicpain #chronicillnessawareness#anglican #ehlersdanlossyndrome #illness#pain #painwarrior #zebrastrong#gastoparesisawareness#gastroparesiswarrior #potswarrior#Gastroparesisawarenessmonth

Nicole Eloise 🍂🌈💕 media on instagram
@iamnicolebrooks
  • 22 likes
  • 0 comments

Two things I’ve been using recently on bad pain days like today 💕 @thebodyshop almond milk with oats face mask is designed for sensitive skin, and leaves my face feeling amazing ☺️ @anatomicalsuk oi you throbhead! is a balm that you rub onto your temples when you have a headache. It’s only £4 on @asos and it actually helps me! Does anyone else have any headache recommendations? I’ve been getting really bad ones recently 😭 #chronicillness #chronicillnesslife #chronicillnesswarrior #chronicillnessawareness #chronicillnessproblems #chronicillnessblogger #chronicpain #chronicpainwarrior #chronicpainawareness #chronicfatigue #myalgicencephalomyelitis #fibromyalgia #fibromyalgiaawareness #fibromyalgiawarrior #invisibleillness #invsibleillnessawareness #invisibledisability #spoonie #flareup #headaches #anatomicals #thebodyshop #potd

Erin🌻 media on instagram
@chronically_erin
  • 14 likes
  • 0 comments

Good morning! We’re heading back from Connecticut and stopping in New York City!! I’m so excited. It may be tough for me since it’s my first time having to walk extensive distances since being diagnosed with POTS and gastroparesis. For anyone who has been to NYC, what should I check out while I’m there? #gastroparesis #gastroparesisawareness #potssyndrome #pots #chronicillnessawareness #chronicillnesswarrior #chronicillness #chronicallyill

Lauren Tugwell media on instagram
@endobunny
  • 65 likes
  • 3 comments

WHAT DOES YOUR PAIN FEEL LIKE? 🤔 • This is a question I’m asked quite a bit, and my answer changes dependent on a few things - 1) how I’m feeling that day, 2) whether the person is *really* interested and 3) if I want to be honest. Sometimes I get so BORED of repeating myself because it’s so rare I’ll find someone who really understands 😞 • Day-to-day my pain is a constant nagging toothache, accompanied with sharp pain, twisting and pulling sensations 😖 My bad days are full of throbbing, punching and ripping feelings, and my worse days are all of the above plus bursting, burning and hot-poker pain 😫 It’s the worst cramping pain you’ll ever feel. • My pain has progressed from being cyclical with my period, to the days before and after, to every single day. 📆 My pain is 24/7 - people who do not experience this cannot comprehend it. They don’t believe it can be “that bad” or “that often”. They don’t understand how it limits our activities, makes us struggle and stops us from doing things 🛑 • At the moment my pain has been consistently bad for months and there is NOTHING that can be done. It’s taken me to hospital, made me have emergency surgery and is now causing complications 🤒 • Pain changes a person. I’ve noticed I am more down and not bothered about doing things because the words “I can’t” come in my head. And I am working to improve that 🙏 • Pain is not always recognised as a serious problem, which NEEDS to change 🎗 • #blog #blogger #support #community #chronicillness #chronicillnessawareness #invisibleillness #invisibleillnessawareness #butyoudontlooksick #spoonie #endometriosis #endo #endosister #endowarrior #endosisters #endowarriors #adenomyosis #adeno #adenosister #adenowarrior #adenosisters #adenowarriors #mecfs #chronicfatigue #myalgicencephalomyelitis #interstitialcystitis #bladderpainsyndrome #pcos #polycysticovariessyndrome #chronicpain

NICOLE~MommaPrenuer~Link👇🏼 media on instagram
@nicole.liammari
  • 68 likes
  • 4 comments

Have you even been to Jamaica? My littles living their best life ❤️. We arrived in Jamaica for our family vacation Thursday afternoon and it’s been amazing! I am so happy that even with my 2 autoimmunes I feel great with my new protocol that I started. Need all the energy I can get to keep up with these 2 lol - I will be posting just not as frequent ❤️. Be sure to check out stories 🙌🏼

The Every Endo | Alexandra media on instagram
@theeveryendo
  • 59 likes
  • 0 comments

REMINDER 🌻 Don’t let someone or something on the internet rush you into anything. Just because someone else where got back to a job quicker than you, doesn’t mean that you’re failing. Just because someone got back into the gym quicker, doesn’t mean you’ve lost. Taking things at your own speed, whatever that speed may be is valid and correct if it’s perfect for you. 💛 . #endometriosisawareness #endometriosis #endosisterhood #endo #endowarrior #chronicpain #chronicillness #chronicillnesswarrior #chronicillnessawareness #pcos #polycysticovariansyndrome #womenshealth #health #chronicfatigue #chronicpain #chronicpainawareness #chronicpainwarrior #healthproblems #mentalhealth #mentalhealthawareness #amitriptyline #codeine #medicine #tramadol #blog #blogpost #blogger #healthblogger #positivevibes #positivemindset

The Unchargeables media on instagram
@theunchargeables
  • 52 likes
  • 0 comments

Me again, CJ, to talk about fatigue and "charge" or "spoons". Fatigue with chronic pain is a total bummer and the basis of the charge/spoon theory. The theory states that each day you have a certain amount of charge and once your batteries are depleted, that's it. You can't get more charge. Some people flare when they run out of charge, others simply crash. The current medical advice is to push as hard as you can without running out of charge, that way you slowly increase the capacity of your batteries. Fatigue can hit any time, especially if you've had a busy day or days. I felt wonderful last week and got a lot done (even by my old, pre-illness standards) but for the last two days I've felt like I've got the flu and am wearing concrete clothing. It can make it incredibly hard to do things like shop for the holidays or socialise: I'm dreading the weekend because I have TWO parties to go to and can barely stay awake a whole hour, let alone the duration of a night time party. But we, as Chargies, go on. I hope your weekend is going well and you have charge to spare.

✨ Emma 🌙✨ media on instagram
@thechronicsurvivor
  • 412 likes
  • 32 comments

- - This is a really important topic. ✨ We’ve all been there, The impending doom of a flare up, a crash, sheer exhaustion, heightened pain, but we somehow still don’t give ourselves a “do nothing” pass. Why? Why is it only ok to rest and do nothing if we have a broken leg? Why is it only ok to rest if we have an infection or flu? And yet we find ourselves with chronic illnesses such as #myalgicencephalomyelitis and #fibromyalgia and even #mentalillness not allowing ourselves to rest and heal. Again, why? We are brought up in a goal driven, perfection driven, hyper pressured society where it is frowned upon if someone is in bed most of the day, nevermind weeks or months. We become so used to our illness that it’s our new normal and when we have to rest we get frustrated with ourselves. We want to be feel productive in society and it taps into our self esteem and self worth and if we aren’t careful can really impact our mental health. We can feel judged by friends and family and this in turn can hinder our recovery or management of our illness. We feel like just lying here is; “Lazy” “Failing” “Wasting life” “Slob” “Pathetic” etc. when in reality, there’s nothing to be ashamed of. We’re not doing anything bad or wrong. In reality we are just actually practicing self care. We are trying to heal. We are trying to give our bodies time to heal and give ourselves a chance at a better future. What are you doing by resting? Trying to heal. Right? So let go of the society shame game, Let go of the society perfection game, Let go of the self pressure game, We’re not playing those games anymore. You are allowed to rest. You have nothing to feel bad about. Much love. XO ✨ #chronicillnessawareness #chronicillnesswarrior #mentalhealthsupport #chronicpainwarrior #mecfs #mecfsawareness #mecfsrecovery #fibro #spoonie #spooniesupport #spoonieproblems #spooniewarrior #selfcare #selfworth #invisibleillness #mecfsfighter #spooniefamily #society #chronicillnesses #invisibledisease #invisibledisability #mentalhealthadvocate #health #chronicfatiguesyndrome #chronicallyfabulous

Cath Ortiz media on instagram
@cathysgutthis
  • 20 likes
  • 1 comments

Didn’t post yesterday because I received my 3rd Entyvio infusion and that knocks me into a state of exhaustion. It is my 6 week dose. You get infusions at week 0,2,6, and then every 8 weeks after. I have been told that I should notice a difference after this dose, as I am tapering off prednisone 5 mg each week. Prednisone has been the only thing helping me and of course they are the worst to be on long term. I have tried all types of mesalamines, enemas, Humira, and azathioprine. Nothing seemed to help when I tapered off prednisone to see if it was working. I am hoping this infusion is the miracle drug that puts me in remission and hope to be completely off prednisone for a long time. Positive vibes! 30 mg’s to go! Of course, traveling when your disease isn’t exactly under control is a bit risky. Especially to a foreign country. I get anxiety thinking about it, but I have made sure I had enough prednisone 🙄 from my doctor and other pain 💊 just in case. I also had her write me a note saying I’m taking these drugs and that I need them. I have it a bit more comfortable since my family will be down there and they already searched for gluten free/ dairy free foods I can eat. Will be posting here what I find 🙂.

Emily 🌻 media on instagram
@crps_queen
  • 109 likes
  • 2 comments

We heard back from my paediatrician yesterday. We were hoping to get my next round of ketamine infusions done here at my local hospital under my paediatrician, but he called and said he’s not comfortable doing them for me because he doesn’t know much about ketamine. So I’ll be going down to Brisbane around the 15th of January. The infusions will be going for around 3-5 nights (not sure yet), and since I have to be monitored I’ll be inpatient for 4-6 days. - St Vincent’s is a boring ass hospital, so if you have any suggestions on things I can do to kill time let me know in the comments! I’m planning on doing colouring, watching movies, make some bracelets etc but I’d like some options! But I’m hoping to also see @hypermobilespoonie Again & to finally meet my babe @stella_artuso So HOPEFULLY I can see them both😊😊 (Old pic)

Tiffany Kairos media on instagram
@tiffanykairos
  • 78 likes
  • 3 comments

It always hurts to receive devastating news. Unsure of where to turn or what to do. One thing I knew with a certainty... giving up was not an option. Giving all that I have to fight back was and always will be a definite. • That moment changed my life for the better. Made me stronger, braver, wiser, filled me with more confidence and care for my well-being. First...it hurt and then it changed me. To continuously rise above epilepsy. 💜

🌻ChronicallyFatiguedYetStrong🌻 media on instagram
@chronically._.chloe
  • 29 likes
  • 3 comments

Day 4 - Of my 100 day challenge to raise money for an electric wheelchair. The link is in bio and here; https://www.gofundme.com/getting-an-electric-wheelchair?fbclid=IwAR2BwX9LEa0f-hMAW4raOEcf5TEwRb4tdZJ3V0WjxWAo7-mJMukVHNm4wT8 Any donation no matter how small would be gratefully received & all the info is in the link. 🌻 I think one of the hardest things about having a chronic illness is the feeling that you must justify everything, every symptom, everything you can do, everything you can't do, every setback, every good day, every bad day, every decision, every no... Everything to someone else. Sometimes even to ourselves. Maybe it's a way of grasping for control when it feels like we are out of control, I don't know. What I do know is that it can be so exhausting trying to help someone else make sense of what I am going through to soften the blow for them when much of them, I barely have the answers myself. For my close friends & family I do seek to be honest, transparent & communicate clearly as it helps those around me support me & cope with the struggle of supporting someone they love going through such unpredictable illnesses. However when I meet a doubter or a cynic or someone questioning "is it really that bad" or throwing "why's" at me... I have to remember that sometimes, no answer is acceptable. It is not my job to make people make sense of what I am going through. It's my job to get through it. Also when writing this, it came to mind that God says the same to me sometimes. Most of you know I am a Christian. Being a Christian when I have the conditions I do, can be so hard. I often find myself crying out WHY OR WHEN OR HOW. Sometimes I feel God gives me clarity & explains to me why I am going through what I am, othertimes I get nothing but the reality of his love & presence with me as I go Through the struggle. Sometimes it's like in answer to all my questions & rage, God takes a loving step back, forces me to sit with my questions & fears saying "I'm under no obligation to make sense to you. I never promised you a rose garden. I never promised there would be no rain. I never promised you would always understand. I promised I'd be WITH you." 💛

aliceellagram media on instagram
@aliceellagram
  • 211 likes
  • 103 comments

Having just spent three days cuddling my cat back home, I can confirm that he is a magic cat who cures all ✨ (ok... I’m not cured 😂... but maybe I needed a break, and cuddling him / eating pizza was much needed 😂🙈) I have made huge changes in my life recently and for once my gut was right! Surround yourself with people (or cats) who make you the best version of you ONLY!! Fuck giving your precious energy or love to anybody else 🙌🏻👌🏻✨ I am feeling the best and most positive I have in a long time 💖 Now to eat more pizza and find a neighbours cat to ‘adopt’ 😂🤷🏼‍♀️💖 #bringiton #positivequote #positivememes #catobsessed #pinkaesthetic #bitchdontkillmyvibe #chronicillnessawareness #chronicillnesswarrior #myalgicencephalomyelitis #cfsme #cfs #cfswarrior #invisibleillnessawareness #invisibleillnesses #invisibleillness #healthmemes #changequotes #catquotes #trustyourinstincts

Zoë Arnold media on instagram
@zoes_story
  • 33 likes
  • 0 comments

I've not had the energy to post anything lately, so I thought I'd just pop up and say hi! The usual end of term rush has started, I have treatment reports and essays due as well as all the paperwork that accompanies being a conservation student. My body is also deciding that now is a good time to throw a tantrum. Pain dislocations fatigue and blood pressure irregularities are ruling my life, and if I have energy, it's going into university work so I haven't got a lot of energy at the moment for anything non essential. I'm counting down the days till Christmas so I can hug my dogs and have a lay in! Who else can't wait till Christmas holidays begin? My DMs are always open if anyone needs anything, and I'm active on my stories most days, but coming up with photos and anything meaningful to say isn't happening. Bear with, normal service will hopefully be resumed shortly. . . #spoonie #ehlersdanlossyndrome #heds #eds #edsawareness #ehlersdanlossyndromeawareness #dislocations #intestinaldysmotility #chronicillnessawareness #chronicfatiguesyndrome #mecfs #cfs #nervedamage #tired #babewithamobilityaid #zoesstory

Mika & Luna media on instagram
@ad.meliora.vertamur
  • 22 likes
  • 3 comments

Yesterday we had our first physio appointment together. It was definitly more fun with the two of us and I enjoyed doing exercises with my sister 👭 But it wasn't the best timing for me... I have been sick all week and still have a bad cold. Plus I had sooooo much pain in my muscles since I had physio, went to Ikea and horsebackriding last friday and saturday. Those sore muscles were just getting better yesterday but they sure made us work and now everything hurts again 😅😤 💛 Mika

InflammaTribe media on instagram
@chronic_illness_queen_rose
  • 37 likes
  • 7 comments

Lots of people have been asking what procedure I had yesterday, and I found this graphic that would help. . So, because of endometriosis, high oestrogen levels and a pituitary adenoma, I’ve developed a lot of adhesions, an endometrial fibroid that’s sitting outside my uterus, ovarian cysts, and a giant endometrial polyp. . Since I’ve had more than 10 abdominal surgeries, my specialist didn’t want to make any incisions unless absolutely necessary, but something had to be done to reduce my pain and other symptoms like constant heavy bleeding. . Yesterday, I had a procedure that allowed for removal of the polyp and for the lining of my uterus to be scraped away. I also had a mirena - an IUD - inserted to try to stop (or at least minimise) my menstrual cycle. My body needs a break from it, especially since every cycle means that my adhesions get bigger and cause more pain. . We’re hoping that this will ease my symptoms enough to hold off on having an abdominal procedure because that would be a very complicated activity! . So, can I please ask you all to keep your fingers crossed for me, so I don’t need to have any more endo surgery any time soon? I have a good feeling about this already, so that’s a great start! Thanks y’all 💜💛💗 . . . . . #inflammatribe #invisibleillnessawareness #chronicillnessawareness #chronicillnesswarrior #autoimmunedisease #endometriosis #endometriosisawareness #endowarriors #oneinten #endometriosissurgery #hysteroscopy #uterinefibroids #ibdwarrior #crohnsawareness #crohnswarrior #pituitaryadenoma #pelvicpain #chronicpainwarrior #personaldevelopmentjunkie #selfdevelopmentjourney #selfcareisntselfish #personalgrowthjourney #wellnessjourney #selfkindness #keeplearningkeepgrowing #powerofpositivethinking

Kenny media on instagram
@getting_back_on_my_feet
  • 21 likes
  • 3 comments

One thing I’m coming to learn in the chronic pain community is that “some people” would rather just live life in pain and not fight to get better. I just don’t get these kinds of people. I’d give anything in life to not live life in the pain I do daily. I’ll push for any testing, procedure or treatment that I can possibly get done. What I won’t do is just sit back and let my conditions control my life as they control enough of it already even while fighting. To each is own in life and the choices one makes but I know this much I’ll never give up fighting daily for my health and I’m always open to advice from others in the chronic pain community, family, friends or medical professionals. No suggestion ever gets brushed away.... For those living life suffering and not pushing to find facilities or treatments ask yourself why your not fighting harder for you or your family..... . . . . #herniateddisc #bulgingdisc #herniateddiscssuck #spinalhealth #backhealth #chronicpain #chronicillness #chronicillnesslife #chronicillnessawareness #painmanagement #mentalhealth #mentalhealthawareness #healthyliving #sickandtired #malespoonies #differentlyabled #disabled #handicapper #spoonie #spoonielife #degenerativediscdisease #arthritissucks #chronicpaincommunity #immobility #inflammatoryboweldisease #ulcerativecolitis #colitis #mri #depression #nervepain

Dart media on instagram
@froggin_awesome
  • 47 likes
  • 8 comments

TW: #eatingdisorder #self harm. I struggle with my own #weight and appearance issues to this day because of this mentality. To me, I’m still not allowed to wear shorts when it’s hot, and to dress exclusively for my body shape to hide any and all flaws. Looking back, I was in my prime and no more than 135lbs being told I had too high of a BMI and needed to lose weight. When I was 125, I desperately wanted to be 115. I wanted long, lean, slender legs and prominent collarbones like all the other girls. I hated my stocky build and small chest. I literally had NO #fat on my body except for genetic #cellulite barely noticeable on the backs of my thighs. Since being ill, I jumped to 165. These last two months I’ve struggled and dropped back down to 155. I refuse to look at myself in full length mirrors; the sight of myself embarrassed and depresses me. I’m on meds that cause cravings and water retention as well as bloating, and exercise is only a fleeting dream. There isn’t an hour that goes past in a day that intrusive thoughts about my weight and not being good enough don’t barge into my consciousness. Every time I eat, I feel guilty. Every. Time. I have tried to purge more times than I can count, even in public places, but I could never get myself to actually throw up. I’ve not eaten for days on end, obsessively took diet pills, self harmed for failing, and thin-spo journaled constantly, trying to figure out my EXACT metabolic rate and how to thwart it. I still check my weight on the scale at least once a day, usually more. Why is it in my head that my own self worth is dependent on how much physical space I DON’T take up?When I would never in a million years hold anyone else to that standard? One day, I’ll learn to love myself. Til then, it’s a learning curve. #urticarialvasculitis #chronicillness #bodypositive #recovery #effyourbeautystandards #honormycurves #alternativecurves #lupus #allbodiesaregoodbodies #bodyacceptance #celebratemysize #goodenough #mentalhealth #bopo #invisibleillness #chronicillnessawareness #hypothyroidism #hashimotos #spoonie #spoonielife #bentnotbroken #fibromyalgia #bodypos #strongnotskinny

Priscilla Cruz media on instagram
@cilcruz09
  • 35 likes
  • 1 comments

I just had to write this because it has been bothering me after watching this today with my little soon to be step-son. I watched this movie with him and thought at first “a Disney movie he will sit through and enjoy the graphics and the singing, so I can get some work done” and (honestly this is just me as a person for any of you know me) I can’t help myself from watching the movie with him because he wants me to. So I cuddle up with him and I watch the movie and start to remember the plot and watching Elsa be so scared of Anna it kinda of put a lump in my throat “that’s kinda how I feel with my sister, and then the thoughts rolled to my family even, my friends included, and as the story like progresses I continue to watch and think of myself. All that I have been through. Masking my pain, masking the agony I feel in my spine around everyone. Closing my own door to friends and family just so they don’t see the real me. The one taking the medicine to make at least get my mind off the pain. The one to not make me anxious when around family if I slip. To not make a sudden wrong movement to hurt myself or injure myself. So many things hit me through this movie and honestly, I felt this connection. Of course just a Disney character created in the minds of creators but I was living with the pain that I must “conceal, and don’t feel. I must put on a show. If I make one wrong move, everyone will know.” I couldn’t believe how much it hurt. Even when she is in pain and she confesses she doesn’t know how to stop the winter, and I’m sure you can guess it, we don’t know how to stop it sometimes either!! Seven years it took me to conceal and not feel. Seven long years that most people have for their entire lifetime. Just thinking, if they can make a movie about it, we can talk about it. If any of you have any comments to this please feel free to share! ❄️❄️❄️ #chronicillness #chronicpain #spinalpains #iam1stphorm #spinalhealth #spinalcordinjuryrecovery #spinalsurgery #spinalsurgerywarrior #spinalsurgeryrehab #chronicpainwarrior #chronicfatigue #chronicpainawareness #chronicchicks #chronicillnesswarrior #chronicillnessawareness #chronicillnessproblems

Kelsi Wise media on instagram
@chronically_illin
  • 82 likes
  • 1 comments

Update: for those who don't care, here is a very cute picture of Vivian 💖 I have been swamped with work and school, so sorry for not really posting on here. Normally I'm pretty good, but it seems like after getting all of my christmas shopping done and being busy with work and stuff, the month has been one big blur 😔😪 So back to posting 🤗💖 I hope everyone has had a great week and even better weekend 💖💖

Multiple Sclerosis Awareness media on instagram
@onwedswewearorange
  • 68 likes
  • 1 comments

Mouth guard in. Sleeping pill taken and waiting for sleep to take me since I work in the morning. Sometimes I just feel like throwing up peace signs and taking sefies. Friday nights sure have changed since I've gotten sick and since the baby has come, pretty sure I wouldn't change a thing. #selfie #nomakeup #excusemybeauty #peacesigns #poorasleepben #raisesomehell #mouthguard #igrindmyteeth #anxiety #mentalhealth #mentalhealthawareness #mentalhealthandchronicillness #silly #gottasmilethroughthepain #bensgotsleepapnea #cpap #chronicillness #chronicillnesswarrior #chronicillnessawareness #invisibleillness #invisibleillnessawareness #invisibleillnesswarrior #iknowimcute #curvesfordays #effyourbeautystandards #multiplesclerosisawareness #multiplesclerosis #multiplesclerosisfighter #spoonie #spooniestrong

The Unchargeables media on instagram
@theunchargeables
  • 154 likes
  • 12 comments

Can't work any less than what I'm doing now - CJ ------------------------------------------------ 🌟WIN unique chronic illness clothes from the Unchargeables shop! Link to giveaway in bio. ------------------------------------------------ #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior #chroniclife #autoimmunedisease #chronicillnessawareness #anxietywarrior #sicklife #disabledandcute #invisibleillnessawareness #disabled #zebrastrong #spooniesunite #raiseawareness #butyoudontlooksick #disabilityawareness #invisibledisability #chronicpainwarrior

CoachArt media on instagram
@coachartorg
  • 36 likes
  • 3 comments

❤️ CoachArt has a new way that YOU can make a difference in the lives of children impacted by chronic illness: give the gift of your knowledge! . . 👆Swipe Up on our story today to learn about the CoachArt Online Advisory Board and find out how your knowledge can benefit families impacted by childhood chronic illness. CoachArt.org . . . . #coachart #nonprofitorganization #artsandathletics #thegiftofknowledge #childhoodchronicillness #givingbacktothecommunity #socialgood #makeadifference #impactlives #childrenscharity #iheartcoachart #philanthropy #charitablegiving