Grit & Grace media on instagram
  • 1 hours ago

EDS awareness month is slowly coming to an end. I’ve tried not to post too much, but by posting I hope to educate people about the reality of living with this invisible illness. It’s hard, every day is hard. Even if you see me smiling, laughing or walking without a walker, cane or brace (back brace, knee brace, neck brace, etc) it doesn’t mean it’s a pain free day, I have not had one of those in years, many years. The pain is still there, it just means my desire to push on and live despite the pain was stronger than my need to collapse into the fetal position and cry that day lol 😂. Some days are much better than others (it really does change daily) and some days crying in fetal position wins and no one (other than my closest family/friends) see those days. You only see the happy and the joy (because it’s what I try to post and focus on). The pain will continue, but so will I. #ivegotthis #edsawarenessmonth #edsawareness #heds #cleds #ehlersdanlossyndrome #chronicpain #chronicfatigue #zebrawarrior #pots #cci #gerd #ibs #chronicillnessawareness #spoonie #chronicallyillmother #chronicallyill #zebrastrong #hypermobility #myedschallenge #butyoudontlooksick @hypermobility_ #repost

The Chronically Unimaginable media on instagram
  • 3 hours ago

Since it's Sunday, I wanted to address an important issue. Chronic illness is a hard topic to talk about in church. In this picture, you can see me and one of my best friends even to this day. This picture was taken in 2013. We were getting ready to leave for church camp. I want to discuss how chronic illness can create a significant barrier in being able to attend church and be in that community. Luckily, I had a few friends who understood. However, there were a lot that didn't. I would always get the question of whether or not I was coming the next week to morning Sunday services. My answer was always, "I don't know. I have chronic illnesses, so it depends." You see mornings are extremely hard for me. I could attend the weekly youth group meet up at night, but rarely the Sunday morning service. It's just how it is. Living in a small town, there are only about 2 churches that offer a Saturday night service. A service I could attend. However, the churches do not fit in with my beliefs. In the church, not many people are aware of chronic illness. They see you as lazy and "not really part of it," if you don't attend Sunday morning service. Why don't they have more options available? Why isn't there outreach programs specifically for the disabled, like there are for the shut ins? It's difficult to always explain, but feel like you are never actually heard. Sure, I look fine, but I need accommodations. I have chronic illnesses and that's just my life. It shouldn't bar me from accessing a house of worship. Unfortunately, this is a huge problem today and not just with chronic illness. Wheelchair users are finding they can't access the buildings or that there are no accessible bathrooms. How sad is that? If we, as a church community, are looking to welcome everyone, shouldn't we fix the problems preventing people from coming? God wants us to minister to the sick (and not just the acutely sick). I desperately want to join a church community, but I cannot. This is such a huge problem and is continually going unrecognized. It needs to change! Yet, it is unlikely it will soon. Keep your heads up warriors!

Caitlin Johnson media on instagram
  • 5 hours ago

Peak adulthood! A chronic-pain sufferers dream! I haven't been this excited since I bought my robot vacuum! We got a new bed... King size (so less getting smothered by dogs)... AND DID I MENTION IT CAME WITH AN ADJUSTABLE BASE?! My achy joints all rejoice! 😊

Lindsay 🌻 media on instagram
  • 5 hours ago

YOU ARE DOING ENOUGH AND ARE ALLOWED TO REST IF NEEDED 🌻 • Ik ben mezelf al drie dagen massief aan het overdoen (vanuit m’n bed 🙄), veel te veel indrukken en prikkels, effe proberen afkicken morgen 🌻 • 🇬🇧 I’ve been overdoing it for the past three days (from in my bed 🙄), way to much stimulation and impressions, let’s try not to tomorrow 🌻

  • 6 hours ago

🔴🔴 Chronic illness Unisex T-Shirt! (New colors are available) . 👉 I'm not faking being sick, I'm faking being well !! . ORDER NOW 👉 LINK IN BIO 👈 . .*10% of every item bought is donated to a charity for chronically ill. . . . WORLWIDE SHIPPING🎁✈ Printed in USA😍🏛 . . . . #chronicillness #chronicpain #chronicpainwarrior #chronicfatigue #chronicfatiguesyndrome #chronicillnessawareness #lupus #chronicpainawareness #chronicwarrior #chronicallyawesome #chronicdisease #chronicallyill #gastroparesis #outofspoons #cfswarrior #fibromialgia #chronicallyillmom #invisibleillness #chronicallyill #butyoudontlooksick #spoonielife #spooniemom #warriormom #potssyndrome #invisibledisease #invisibledisability #chronicillnessmom #cardiovascular #spoonie #cfsme

Hannah media on instagram
  • 6 hours ago

Acid. Freaking. Reflux. I can’t tell you how much I hate acid reflux. I can barley eat or drink WATER without getting it. Everything and anything can give it to me. Some days it’s worse other days it feels fine.. today is not one of those days, at this point I don’t wanna eat. I’m only eating these chips cause I’m starving. If antacids don’t work, what’s the next step? Yesterday night I couldn’t even burp because of my reflux. And every once a while I throw up in my mouth cause it gets so high. I’m really done.

Lorie Kaufman Rees media on instagram
  • 7 hours ago

//A DIFFERENT TYPE OF RECEIPT//⠀ .⠀ If this hadn’t been the beginning of a medical maelstrom that would be be unleashed within our lives shortly, I would have walked away from this experience considering us lucky this girl had made it to age 10 without any further injury or maiming. And in that regard—still to this day, I suppose, given she’s not grown any less risk-aversive with time—we have indeed been “lucky.”⠀ .⠀ But we had no way of knowing back then how that long summer of intense, unable to be controlled pain—forcing the arm open several times a day, PT three times a week, wearing the spring-loaded splint daily that likewise forced her arm open—would begin to pick the lock on Pandora’s box; the first in a string of events that broke that box wide open and loosed upon our daughter a decade of pain and fatigue. But I’m getting ahead of myself.⠀ .⠀ It’s funny, though, despite all this, how proud that girl is of her scar. She will openly tell you it was probably one of the dumbest things she’s ever done in her life, then finish the story with an upbeat, “you wanna see my scar???”⠀ .⠀ I’ve never brought this up with her—in fact I’ve never even really thought about it until just now—but I suspect some of it is, as today’s quote suggests, the evidence that there was a time when she could take life by the horns and OH BY GOLLY DID SHE. The scar reminds her there was a time when she had spunk and physical prowess and the naiveté to throw caution to the wind. It is her battle wound—symbolic of a time gone by when she had the liberty to be carefree.⠀ .⠀ But I also suspect there is a place within her that looks at that wound and says, “SEE?!?! I really DID hurt myself. BADLY. My pain is REAL and I can prove it to you. It all started RIGHT. HERE.” And she holds it up in defiance of those who says she’s faking, she just wants attention, she’s trying to get out of doing the hard stuff, she’s just lazy and a wimp. “SEE?!?!”⠀ .⠀ My daughter has shown up for life—big time—and it is a great misfortunate she only has the one VISIBLE scar to prove it.⠀ .⠀ But oh, if you could just see what an impressive scar it is…⠀ .

Ava & Knox media on instagram
  • 7 hours ago

Here’s a example of how handles can be used for grounding. Sometimes whenever I am overwhelmed or just exhausted, I use Knox’s handle for grounding. It’s a very useful task and I am grateful for our @yupcollars harness! 💜 #servicedoggear #servicedogsofig #servicedoglife #servicedoglife #servicedogssavelives #servicedogteam #sd #sdit #dogswithjobs #psychiatricservicedog #medicalalertdog #cardiacalertdog #chronicillnessawareness #respectthevest #choosejoy #zebrastrong #dogstagram #boxerservicedog #boxersofinstagram #boxer 🐶 #tasktrained #guide #grounding

GRAPPLINGw/FIBRO media on instagram
  • 8 hours ago

Rookie mistake - 🤦🏼‍♀️ I knew I shouldn’t go to the pool 🏊🏼‍♀️ today. I knew my migraine from this AM would be back. But I also knew my husband had our youngest at the pool already and our amazing neighbors were taking our oldest there. I was jealous. I wanted a fun Memorial Day weekend full of sun too!! 🙇🏼‍♀️ Now I’m down for the count with my trusty ice pack and a steady stream of ibuprofen. 💆🏼‍♀️💊🛌 Any tips from the pros for handling these? #stupidmigraine #migraine #migrainessuck #ihatemigraines #fibromyalgia #fibrowarriors #spoonie #spooniesisters #grappling_with_fibromyalgia #chronicillness #chronicillnessawareness

Fibro Warrios media on instagram
  • 9 hours ago

#FibroWarriorChallenge This is what an #InvisibleIllness looks like! Thank you for participating 💜💜

  • 9 hours ago

Whenever I feel like I need to gather my thoughts and self reflect I go to Lake Shrine. This is a wonderful place in which symbolizes and welcomes all people of all religions that are welcome to experience peace of heart and mind. I appreciate the entire premise of bringing people of all religions together. The environment promotes a sense of peace that is very soothing to the soul. If you are spiritual in any way this is an absolute must when visiting LA. 🖤 🖤 "In doing something, do it with { l o v e } or never do it at all." ~Mahatma Gandhi 🖤 • #doitwithpassionornotatall #passionatepeople #nurse 💉 #nurseofinstagram #selfcarethreads #selfreflection #selfreminder #selfhealers #selfcare #wellnessblogger #wellness #nurselifestyle #prenursinglife #allpeople #nursehoney #doitwithpassion #spiritualawakening #influencers #autoimmunedisease #influencer #spiritualperson #innerfeelings #invisible #invisibleillness #chronicillnessawareness

  • 9 hours ago

Today’s CareWalk for @cooleysanemia was a success! We reached our goal and more! Thank you Buffalo News and Spectrum News for covering today’s event. Tags: #chronicdisease #transfusion #blooddonors #bloodbank #carewalk #cooleysanemia #cooleysanemiafoundation #thal #thalassemia #thalpal #chronicillness #chronicillnessawareness #chronicallyill #chronic

Carol Tuttle media on instagram
  • 10 hours ago

Are you struggling with intense physical pain that leaves you feeling hopeless? For over five years, I had a condition of chronic plantar fasciitis, and it was debilitating. But today I’m going to teach you how energy healing helped me heal this condition. And I have hope for you because now you can use the same methodology toward whatever pain you’re dealing with, and you’ll be able to free your body up to heal. Watch to see how: Click on the link in my profile for a direct link to the video. #caroltuttle #plantarfasciitis #chronicpain #chronicillnessawareness #painrelief #energyhealing #caroltuttlehealingcenter #healwithcarol #chronicfatigue #chronicillness #selfcare #healthcoach

Bex's Honest Reviews media on instagram
  • 11 hours ago

Face mask 👍@myspalifellc Hair mask 👍 @omshearomatherapy Feeling pampered ❤💝 Time for xbox & chill. I am going to bed at 29.... waking up at 30! 😱 bye bye twentys 🖐 Been nice knowing you🤝 #pampering #facemask #hairmask #skincare #haircare #omshearomatherapy #hemp #spalife #lookafteryourskin #lookafteryourself #beauty #birthdaytomorrow #byetwentys #hello30 #positivevibes #positivity #smile #invisibleillnessawareness #chronicillnessawareness #keepgoing #keepsmiling #youcandothis #yournotalone #loveyouall #thanksforthefollowersandlikes #xboxandchill #xboxone #xboxtime