@rheum4today
  • 2 likes
  • 0 comments

Feeling extra special for the day! My niece Madison is so happy that she has become famous😂. She’s always been a huge supporter and now feels she has done something to help. I could never repay what this 6 yr old child has given to me. I love you to the moon but farther. @curearthritis _______________________________________________________ #dmards #livingwithra #invisibleillnessawareness #autoimmunedisease #chronicillness #invisibleillness #chronicillnesswarrior #spoonieproblems #spoonie #jra #jia #rheumatoidarthritis #rheumatoidarthritis #rheumatoidarthritissucks #spoons #spoonie #spoonielife #spooniesupport #spooniewarrior #spoonieproblems #spooniestrong #youdontlooksick #spooniesupport #rheum4today #spoonielife #pain #depression #majordepressivedisorder #anxiety #pain #fatigue #autoimmunediseases #juvenileidopathicarthritis #juvenilerheumatoidarthritis #juvenilerheumatoidarthritisawareness

Shannon Burne media on instagram
@chronicallyshan
  • 22 likes
  • 0 comments

Hiiiiii I’ve been bad about posting this week and I’ve felt like I’ve been kinda MIA 🙈🙆🏼‍♀️ I’ve never blocked out social media breaks in my calendar but I think it’s healthy to take breaks every once in awhile. There are times when I feel uninspired, unmotivated, and drained. I don’t have inspiring words to share. And when I attempt to write something while in one of these moods the words never feel right. I don’t feel like I’ve helped anyone or made a difference. I don’t feel authentic. So I take a step back and don’t post much and I honestly feel 10 times better after. So thank you to all of you who let me be and let me go through these phases where I don’t post. I appreciate it 💓 #spoonie #chronicillness #invisibleillness #autoimmune #warrior #antiphospholipidsyndrome #undifferentiatedconnectivetissuedisease #gerd #pots #orthostatichypotension #ist #mastcellactivationsyndrome #sjogrens #raynauds #potsie #dysautonomia #sick #disabilityawareness #staystrong #spooniewarrior #spooniecommunity #spooniesunite #butyoudontlooksick #awareness #raredisease #advocate #lifewithchronicillness

@blessedabundantoils
  • 0 likes
  • 2 comments

My girl Emma loves to learn to make yummy stuff. Today she asked me to teach her to make the best fudge ever. Making fudge is truly a labor of love for me now. What use to be easy is painful and exhausting. I only ever make my delicious fudge at Christmas time, and now I can usually only make 1 batch in a day when I use to make 4 to 6 in one stint. So now I only give fudge as a gift to a very few special people. I have had the ingredients for 2 weeks but before I could make the fudge, I had to be ready mentally and physically to do it. Emma’s request for me to teach her was just the push, support and inspiration I needed to get the job done. We worked together, making 2 batches! She did a great job🥰. We had a lovely time together and I was so delighted to pass down my secrets to making great fudge. I couldn’t have done it with out her♥️ #christmasgoodies #familytimeinthekitchen #shelovestobake #nourishingtraditions #makingmemoriestogether #momdaughtergoals #passingiton #psoriasissucks #psoriaticarthritis #chronicpainwarrior #makingthemostofit #spooniesupport #spooniewarrior #spooniefamily #fibrowarrior #fibrosucks #familymeals #familymakesusstrong #momof4 #momof4kids

💚🎶ALY💊💜 media on instagram
@smiling_spoonie
  • 6 likes
  • 1 comments

Hey! Come follow me on @themightysite https://mgty.app.link/9vHwc9rVES

Mings Medicinals CBD Oil media on instagram
@mingsmedicinals
  • 19 likes
  • 1 comments

You are the expert on YOUR body. Sometimes you have to be your own advocate! Most of the CBD success stories we hear are from people who had a someone heavily advise against it. They still went out and tried it and discovered something great... #cbdcures

Linda_joy media on instagram
@linda_joy72
  • 8 likes
  • 0 comments

My #topnine! My daughter did this for me 😁 thanks @emmy97xox 😘 And thanks to everyone who likes and follows. I can’t socialise much anymore, so having connections with people on Instagram means a lot to me. It’s wonderful to meet people from all walks of life all over the world. Sending virtual hugs to everyone, especially those struggling with “Christmas cheer”, it’s ok to feel depressed at this time of the year, I try to focus on small things I’m happy about, comfy bed, sweet pets, air conditioning, a hot coffee. Looking at small things that make me feel good soon adds up #thankful #thankyou #depression #itsoktonotbeok #feelingdown #youreafighter #keepfighting #itsworththepain #hangonwithyourfingernails #ivebeenthere #stillgetdown #lifeishardbutalsogood #ibelieveinyou #christmascheer #smallthings #makemehappy #connections #wonderfulpeopleintheworld #hugs #stopforaminute #smalljoys #spoonie #spoonielife #spooniefamily #spooniewarrior #spooniechristmas

Stronger with ITP media on instagram
@stronger_with_itp
  • 17 likes
  • 1 comments

Am I right? Or am I right? 😴 . I find the #fatigue that comes from #immunethrombocytopenia can often interfere with ones daily activities. When my #platelets are low I sometimes am overcome by fatigue . So what's the best way to overcome fatigue? From personal experience I say be submissive and give your body what it's asking for . I know you will want to fight it and may feel like you are missing out. However the fatigue will pass once your platelets increase and you will feel like your usual self once more 😉

@mysidekick_andme
  • 21 likes
  • 1 comments

So apparently my mom lost my birth certificate! So had to go get that. Lost my social security card in all the moves. Last and thankfully least was the dmv to change the address on my license. At the dmv was where I ran into the fake service dogs. Like I said, I will explain how it is I came to this conclusion. When they first walked in I was skeptical because there was two and they were wearing these fancy dog sweaters and were all over the place. Definitely not under control, the minute she stoped walking one started rolling around all over the ground. I moved myself away because I got more nervous and because they were pits. (No discrimination just had a very bad experience and still not over it fully especially around untrustworthy ones). Next evidence was a couple of people walked through the door and they barked at them. She finally got settled in her seat after being asked if they were service dogs which she said yes too. A dad and his son had to sit next to her due to little seating and immediately one of them broke from her hold on the leash and got up into the kids face licking him all over. Had even jumped half into the dads lap. After that she just walked the halls waiting for her number. The lady came around for clipboards and the person next to me commented on them saying they weren’t service dogs. I agreed and said they weren’t, the lady said she couldn’t do anything. I immediately spoke up and said actually you can. I pulled up ADA laws and showed her they could ask handlers with uncontrolled “Service animals” to leave. She took it to her supervisor and she printed off. Just in time for the dogs to bark again and they had to escort her out. After having politely asked her to leave she started cursing at them and yelling. It was quite the scene, just glad I was able to get out before she walked out the front because it just went down hill after that. I just drove away and went home pleased I got it all done so quickly! #spoonie #spoonielife #spooniewarrior #chronicillness #chronicpain #chronicfatigue #staypositive #blessed #spreadawareness #asthma #fibromyalgia #invisibleillness #anxiety #socialanxiety #servicedog #ptsd

Brandi Clevinger media on instagram
@beingfibromom
  • 11 likes
  • 1 comments

Do you make resolutions for the New Year? I use to make them, and then realized I should make them specific to my fibro life. Check them out here in my article “10 Fibro Resolutions” in The Fibromyalgia Magazine (link in bio): http://www.beingfibromom.com/10-fibro-resolutions/

The Myalgia Fibro Warrior Uk media on instagram
@themyalgiafibrowarrioruk
  • 25 likes
  • 11 comments

🦋This is what happens in a flare up. Started with torticollis in my neck causing my head to shake. Now moved to my legs. Still going as I am writing this now. Never filmed it before but never had it this bad. Its needs awareness as this is what really happens. 25 minutes now!!🦋#dreambigbeunique#empowerthepatients#fibromomblog#awarenesscollectionbylynda#joycefornmo#flareup#fibromyalgiafighter#spasm#chronicpainawareness#pain#painwarrior#fibromyalgia#pain#fibrowarrior#reallife#spoonies#spooniewarrior#fibrolife#reallife#torticollis#medicaljourney#waiting#hurts#chronicillness#truestory#sick#spoonie#chronicpainawareness#raisingawareness#invisibleillness#spooniestrong

@thejmweiner
  • 12 likes
  • 1 comments

I wish I was sure what app this is from, so I could give proper credit! A corollary to #spoontheory which I think is dead on? What do my other #spoonies think? . . . #spoonielife #spooniewarrior #spooniesupport #spooniecommunity

Sam Peterson- Autoimmune Coach media on instagram
@sphealthguide
  • 31 likes
  • 2 comments

[If only there was some manual that came with being diagnosed with autoimmunity...]⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 💢I was told "just eat gluten-free for the rest of your life" when I was diagnosed, with Celiac Disease, nearly 12 yrs ago.⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 💢Well. That only helped a little.⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 💢Because after that, there was the anemia, fatigue, the other food allergies, the lingering symptoms, flare-ups, anxiety, food restrictions [and more anxiety], trying/struggling to balance living life WITH this illness. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 💢Oh- and feeling like a burden around friends and fam 😔⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 🔎I wish I could've found someone along the way who had "been there, done that"...⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⏳Someone who could've saved me YEARS of struggling to figure it out on my own...⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⌛It would have saved me so.much.TIME.⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⌛I spent years spinning my wheels and getting nowhere in my health...I spent hours researching the Web for answers, remedies, and cure-alls. All on my own.⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 💡But once I found support, learned the tools, and changed my mindset...⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 💫I started THRIVING instead of just surviving.⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 💫You can thrive too, autoimmune lady!⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 👉It's all possible with my custom VIP Coaching Program! (there's only 3 spots left...!)💫⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 💫Let's talk about what your life could look like next year...Schedule a Discovery Call with me! (it's free...you've got nothing to lose) ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ [link in profile]⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ ::::::>>>Take $500 OFF my VIP Coaching Program now through Dec 23rd! My 🎁 to you!!⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ . ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #autoimmunedisease #autoimmune #autoimmuneillness #chronic #autoimmunewellness #illness #autoimmunity #aip #celiac #spoonie #spoonies #spoonielife #spooniewarrior #invisibleillness #sphealthguide #wildwomanhealing #fatigue #anxiety #ibs #leakygut #healyourbody #loveyourbody #bestyearyet #staystrong #staypositive #healing #mindfulness #wellness #flareup #sickandtired

@adventuresofaspooniezebra
  • 88 likes
  • 6 comments

Yay! 48 days later and I finally got to see Tom again! Sorry, y’all are just going to have to put up with my excited, mushy post! Tom wasn’t phased by my tubes, and thought it was pretty cool that I could “eat” and nap at the same time. I’m so lucky! He said, we’ve made it through the hard part, and now we’ll get better :) Sidenote, I also got to snuggle Tom’s roommates puppy so my day was like a full ice cream Sunday with a cherry on top! You are never too sick to be loved 💜 #chroniclove #chronicillness #chronicpain #pwme #myalgicencephalomyelitis #chronicfatiguesyndrome #ehlersdanlossyndrome #zebrastrong #zebrawarrior #degenerativediscdisease #mcas #mastcellactivationdisorder #dysautonomia #gastroparesis #gjtube #tubie #posturalorthostatictachycardiasyndrome #potsie #potsiegirl #potsiestrong #spoonie #spooniestrong #spoonieproblems #spooniewarrior #spooniestrong #spoonielove #spoonielife

COOL AUTOIMMUNE DISEASE BEAUTY media on instagram
@cool_aid_beauty
  • 12 likes
  • 2 comments

Irritable bowel syndrome (IBS) is a common disorder that affects the large intestine. Signs and symptoms include cramping, abdominal pain, bloating, gas, and diarrhea or constipation, or both. IBS is a chronic condition that you'll need to manage long term.

Connie Wardale media on instagram
@memyselfand_m.e
  • 53 likes
  • 10 comments

Hey guys! Unfortunately I’m still not doing great. Life is really tough at the moment. Me and my mum had a good cry about how unfair life is when she got home and it was good to cry, we both felt a lot better afterwards. I rang to find out my blood results and they said they were ‘satisfactory’ but my phosphates were low and red blood count was high so no idea what that means as I only spoke to the receptionist. Hoping mum will be able to rearrange what we had planned tomorrow to a time when I’m feeling a little better🤞🏼 Sending love and spoons❤️🥄 #butyoudontlooksick #invisibleillness #myalgicencephalomyelitis #chronicillness #chronicpain #chronicfatigue #cfsme #spoonie #spooniesupport #millionsmissing #spreadingawareness #mentalhealth #deppression #video #vlog #vlogger #videodiary #positivevibes #positive #weightlossgoals #weightloss #weightlossjourney ##weightlosstransformation #weightlossmotivation #rest #selflove #warriors #spooniewarrior

Samantha Sherrin media on instagram
@sickinstyle
  • 52 likes
  • 9 comments

It's that time again! It's been touch and go there this week, but I made it under the wire to be well enough to get my treatment. So much has happened since the summer that I am still not fully ready to divulge, but in my last treatment of the year its hard not to reflect. While I am falling asleep, the only thing I can gather in my head and the only thing I want to say is how lucky of a girl I am. - To have friends who give me the space to fall, but always there to pick me back up. - To have a job that I love going to even on the bad days. - I'm strong enough to not just survive each day, but to LIVE each day. And I don't mean just mentally strong, but physically! I have the physical strength to fight for what I want. - But I am the luckiest to have the family I do. Without them and the sacrifices they were making, I wouldn't be alive right now. My parents are who see the full spectrum of what I am going through. The emotional ups and downs, the medication changes and withdrawals that effect my mood and hormones. The happiest of moments and my saddest. They are my Knights of Shining Armor. - And this past year I've begun to develop a relationship with my brother and that is something I've wanted my whole life. Getting sick took almost everything from me, but I got so much more in return. Looking back on everything 2018 has been a good year 💗💗🤜🤛🤗💗💗 #thankful #spooniewarrior #makeupdoeswonders #psoriaticarthritis #psoriaticcolitis #autoimmunediseases #chronicillness #heros #depression #anxiety #ptsd #fightingforward

Ella media on instagram
@xchronicallyxella
  • 15 likes
  • 0 comments

Writing to you from the floor, ft. Fuzzy's feet. We had to clean up the apartment today. I can feel a flare coming on-- I'm having to use more and more aleve and constantly apply numbing cream to my hands-- and I'm scrambling to find time to rest. When I don't find it, I occasionally just lie down on the empty floor. Ugh. #chronicillness #spooniewarrior #chronicinsta #spoonie #spoonieproblems #lupus #lupuswarrior #invisible #invisibleillness #spoonielife #chronicallyill #chronicillnesswarrior #fatigue #flare

Art by Jill Waldrep media on instagram
@artbyjillwaldrep
  • 55 likes
  • 5 comments

Yesterday I took a break from my project and Xmas orders to paint burlesque babe @dottie__may . This goddess and I connected over my art and our shared health issues—just one of the many reasons that I am so grateful for this land of insta. Can’t wait to watch you twirl them titties IRL one day, girl!🖤❤️

Tiffany Kairos media on instagram
@tiffanykairos
  • 41 likes
  • 1 comments

All smiles! 🙂 • What an honor to have my story featured on the @cureepilepsy website! 💫 • Very happy to raise awareness of #epilepsy alongside this awesome organization. • Check it out! ☺️✌🏼💜

@happydizzy
  • 74 likes
  • 13 comments

Fifth day ✅ And I’m done for now!! And I thought that this tee is appropriate for the fifth day: weekend 🤩 What a week. This has been quite an emotional and physical rollercoaster 💉💪🏼 Thank you all so much for all the love and support!! I’m a bit overwhelmed by all your messages and comments 💜💜💜 Today I was nauseous, constipated, pain in my legs and arms and the famous Lemtrada rash arrived - it’s hot and itching but manageable. The rash mostly hit my face and arms - see the second picture. My breathing has gotten better from yesterday. I still have a bit of a lump in my throat and acid reflux. And I’m SO tired! 🙃 I’ve already slept a bit when I came home from the hospital today and I can’t wait to catch up on my sleep and just give my body time to recover 😌 I have no plans at all the next couple of days other than sleeping 😴 Thank you for following along! I will keep you all posted! I have my next doctors appointment in 1 month and then blood and urine tests 🍀🍀🍀 . . #lemtrada #lemtradajourney #alemtuzumab #healthy #healthymind #healthymindset #medication #newtreatment #ms #msfamily #msfighter #mswarrior #curems #fuckms #mssociety #msawareness #multiplesclerosis #multiplesclerosisawareness #multiplesclerosisfighter #chronicillness #chronicdisease #invisibleillness #invisibledisease #autoimmune #autoimmunedisease #autoimmunewarrior #spoonie #spoonielife #spooniewarrior

Vicki Oliver media on instagram
@spoon.moon.wolf
  • 42 likes
  • 3 comments

Health update. I saw my rheumatologist today and got in the office and just burst into tears. I told him that I’m barely having a day without migraines, joint dislocation or inflammation. Every day I’m feeling like I’m swimming in treacle. I have digestive issues galore, am bleeding in my joints and fluey all the time. It’s been utterly soul destroying and has made me feel exceptionally low. 😔 I don’t think the poor man knew what to say. He said that the board of five rheumatologists in the area have been discussing my case and I’m too complex and rare to be treated locally. #behcets and the #inflammatory ‘overlap’ condition have become beyond their expertise but I guess we knew that. 🤷🏻‍♀️ But in the good news he’s finally referred me to UCL #hypermobility clinic and wants me to go to the pain clinic. He thinks that with the TB treatment it’s all too much at the moment. 🌳 I feel like this tree (cheesy image I know). I’m the trunk in the middle and all the branches are the different things going on that are stretching me to my limit. Behcet’s, polyarthralgia, hypermobilty, bipolar and housing (or lack of). 🍁 The good thing is I have my feet firmly planted on the ground. I’m refusing to lose my identity under this canopy of sickness. I’m determined to make these branches into something beautiful.

@mysickledcells
  • 175 likes
  • 28 comments

THE WAIT IS OVER! I’m so excited to announce the official launch of my website! * Essentially you’ll have access to a more in-depth look at my journey, all of my news features, advocacy, reach out for support and FINALLY the long awaited frequently asked questions section! I will be blogging weekly and keeping you guys updated with what my 1 year post transplant life looks like! From there visit the links to my various social media outlets and get connected! I have a few initiatives up my sleeve so stay tuned for details into the new year! * * Love you all and thanks for your ongoing encouragement, love and support! A big thank you to @evansthegreat for helping me build this website! Side note.. did anyone else notice that my little advocacy page hit 1000 followers 👀 * WEBSITE LINK IS IN MY BIO 💕 check it out! Also it’s just in its preliminary stages so I’m open to content suggestions!

Regenefi media on instagram
@regenefi
  • 662 likes
  • 8 comments

Discover ReGeneFi CBD Healing Balm. Each container is infused with 500mg of hemp derived cannabidiol and contains beeswax and many essential oils and vitamins to give you cooling relief for pain, itchiness and even dry skin. -- Grab some balm today!! 🎁🎄 25%OFF storewide - limited time only!! --------------------------------------------- visit www.regenefi.com --------------------------------------------- RENEW YOUR LIFE WITH @regenefi RENEW YOUR LIFE WITH @regenefi 🌱 🌱 🌱 #regenefi #regeneficbd #rochesterny #newyork #cbdlife #thcfree #cbd #cannabis #cannabiscommunity #selfcareveryday #cbddrops #cbdinfused #cbdcream #cbdbalm #cbdgummies #anxietyproblems #cbdgummybears #cbdedibles #multiplesclerosisfighter #multiplesclerosiswarrior #fibrosucks #spooniemom #chronicdisease #chronicillness #cbdoil #spooniewarrior #chronicpain #jointpain #kneepain #backpain

Lupus Self Help media on instagram
@lupusselfhelp
  • 332 likes
  • 14 comments

If you have #lupus and don’t “look sick” it doesn’t mean that you are not sick... P. S. I’d like to let you know that through my website you can get a FREE bottle of a live high potency probiotic (50 billion good bacteria) and a FREE container of a premium quality protein. They provide nutrients that are often lacking in people with lupus and #autoimmune disorders. It’s truly free, no strings attached. You can get it via my website http://lupusselfhelp.com/free or just click the link in my instagram profile @lupusselfhelp

The Chronic Illness Community media on instagram
@thechrillness
  • 89 likes
  • 8 comments

F*CK IT // here’s your #friday meditation to help you get through the weekend 😂 Just kidding I’m big on meditating, but this still cracks me up ✨ (Ps. I found the perfect location tag 😆😆😆)

Guinevere Kovalchick Roberts media on instagram
@inked_fibro_warrior
  • 16 likes
  • 1 comments

This past week has been emotionally draining. My pain has been bad and it's been seriously depressing. Thinking about being dependent on others for the rest of my life makes me question all my life choices and what I want out of this life. I go back to the Rhuematologist next week and I'm hoping they can help me feel good enough to start moving around more and get me out of this funk. #fibromyalgiasucks #fibromyalgiawarrior #fibromylgiaawareness #fibromyalgiaproblems #fibromyalgiasucks #fibromyalgia #inkedfibrowarrior #fibromom #fibrowarrior #fibroflareup #fibro #fibroflare #fibrotookmystrength #spoonie #spooniestrong #spoonielife #spooniewarrior #spoonieproblems #spooniefamily #medicalcannabis #cannabis #cbd #naturalmedicine #invisibleillnesswarrior #invisibleillnessawareness #invisibleillness #chronicpain #chronicpainwarrior #chronicpainsucks #chronicpainawareness

Liv Living with Lyme media on instagram
@livlivingwithlyme
  • 47 likes
  • 5 comments

TW: suicide, weight loss/gain, eating disorder It’s really hard for me to post this before picture. Back in 2016 I became severely depressed and anxious. I attempted suicide three times and was hospitalized around seven times. I lost control. And the weight began to pile on...everyday I was getting heavier and heavier. There was a period where I lost a lot of weight but I gained it all back. It wasn’t only my depression and disordered eating...little did I know Lyme also had a big part in my weight gain. I was sad and filled with hatred for myself. I looked in the mirror and was disgusted and I never felt comfortable in my own skin. Recently, I’ve had a lifestyle change. I started eating keto. And the weight is falling off. I’m starting to feel comfortable in my own skin and I am slowly but surely learning how to love myself again. I just had enough of feeling ashamed. I am so happy that I’m seeing results!! #keto • • • • • • #lymedisease #lymediseaseawareness #lyme #lymedontkillmyvibe #lymewarrior #lymediet #lymelife #neurologicallyme #lymesucks #lymetreatment #chroniclyme #lymediseasesucks #lymediet #livlivingwithlyme #chronicillness #invisableillness #chronicpain #chronicallyfabulous #chronicloveclub #seizures #spoonie #seizure #spooniewarrior #spoonielife #thespooniesisterhood #cfs #chronicfatiguesyndrome #chronicfatiguewarrior #fibromyalgia #mybodyhurts

Sick B*tch media on instagram
@chronically.sam.pt2
  • 24 likes
  • 0 comments

Today on, “why is Sam pissed off?” — I wrote it bc A) I like the feeling of whiteboards, and B) I need to practice my letter forming — AnYYYWAYS NOT EVERYTHING IS A TIC. You can’t go “oh” and for the moment stop ticcing when someone points it out, or you notice etc. If you can stop your “tic” it isn’t a TRUE tic — #spoonie #spoonielife #spoonieprobs #spoonieproblems #spooniewarrior #spooniecommunity #chronicillness #chronicillnessawareness #chronicpain #chronicpainawareness #chronicpainwarrior #ibs #oralallergysyndrome #chronicmigraines #medicalmystery #chronicfatigue #fibromyalgia #fibrowarrior #pots #mentalhealthawareness #autismawareness #autismacceptance #tic #tics #anxiety #tourrettes

Connie Wardale media on instagram
@memyselfand_m.e
  • 81 likes
  • 3 comments

So a 1lb loss this week. Although I’ve had an upset tummy most days, when I have had an appetite I definitely haven’t been on plan so I wasn’t sure what to expect this week. I’m more concerned about my health at the moment than my weight loss. I’m still so proud of how far I’ve come with my weigh loss but it isn’t my focus at the moment and that’s ok! #20lbsdown #butyoudontlooksick #invisibleillness #myalgicencephalomyelitis #chronicillness #chronicpain #chronicfatigue #cfsme #spoonie #spooniesupport #millionsmissing #spreadingawareness #mentalhealth #deppression #video #vlog #vlogger #videodiary #positivevibes #positive #weightlossgoals #weightloss #weightlossjourney ##weightlosstransformation #weightlossmotivation #rest #selflove #warriors #spooniewarrior

Katie Lauren media on instagram
@the.facepalm.adventures
  • 31 likes
  • 5 comments

Full day of it tomorrow 😅 Really looking forward to seeing two of my favourite people get married 👰💕🤵 . I'm especially looking forward to spending the day with my girl @a.tired.girls.diary ! Tomorrow we're representing our #millionsmissing crew 💜 We're going in balls deep to a huge social event and we're going to absolutely own it! (We might be asleep by 7pm and we might be paying for it next week but we got this 👊💕) . In other news - Today was a lot to take in from the M.E clinic and I'm starting to drop a little. If I can hold on to this energy spike one more day I'll be happy! My muscles are screaming from this week and I'm in need of a good bit of switch off time 😊 . I'm mulling over what was said in my appointment today, I'm going to try not to think too deeply about possible other diagnosis but I am going to spend more time being nice to myself. A big thing that came up today was about my excessive self deprecating tendancies are and how much it's impacting my recovery attempts. I'll get there, but I think it's going to take a lot of work learning how to be kind to myself . . . . #bathtime #positivegrowth #bekind #candles #fridaynightlife #spoonielife #spooniesupport #spooniewarrior #instagood #positiveday #questioninglife #thinkingoutloud #fitnessgoals #progressing #recovery #chronicillnesswarrior #mecfs #cfsme #potssyndrome #potsie #dysautonomia #invisibleillnessawareness #canyouseemenow #spooniesisters #chronicwarrior #strongwoman #warriorwoman #millionsmissing #youcandoanything

@allygracemuir
  • 23 likes
  • 3 comments

On Wednesday I had a flexible sigmoidoscopy and it was one of the worst experiences of my life to date. • The only plus side was the amazingly kind and friendly staff and the fact I got a cup of tea and fruit shortcake at the end of it. • MRI next week and then waiting for a appointment with my consultant to see if I need minor surgery or not and then back to IVF fingers crossed 🤞🏻

Rachael Hiscock media on instagram
@rachaelhiscock
  • 25 likes
  • 3 comments

Just been to the doctors and decided to sit downstairs for a bit and be in the middle of the decorations!! Doctors went well, amitriptaline being raised, going to have a blood test then go on metaformin. He’s happy with my oramorph intake. He’s honestly one of the best, most understanding GP’s ive seen since this nightmare began 6 years ago! #update #chronicpainwarrior #endowarriors #endo #endometriosis #endometriosisawareness #chronicillness #chronicpain #ill #sick #metforminpcos #pcos #pcosfighter #spoonie #spoonielife #spoonieproblems #spooniewarrior

Dignity LC media on instagram
@dignitylcservices
  • 10 likes
  • 0 comments

Our Waterless 'Towel-Off' Body Wash in action! If you find bathing or showering difficult or impossible, you can now wash yourself without water with our innovative body cleansing foam that gently cleans away dirt, sweat and odours, leaving you fresh and clean without the need for water. Order online at www.dignitylcservices.co.uk/shop . How does this work? Simply massage the foam into the skin and towel off to remove dirt, sweat and odours. Yes, it's really as quick and easy as that. . - Paraben free and pH balanced - Nourishing agents to leave skin soft and smooth - NON-DRIP Technology for mess-free and easy application - Alcohol-FREE . . . #hospitalbagessentials #hospitallife #carer #carehome #health #nurse #nurselife #spooniewarrior #fibromyalgia #autism #autismawareness #autismspeaks

Laura MacLeod media on instagram
@laura_macleod
  • 124 likes
  • 7 comments

Earth is still my favorite place to be! 👽

Chronic Love Club media on instagram
@chronicloveclub
  • 304 likes
  • 4 comments

💛 • 📷: @shainblumphotography #chronicloveclub

@spooniesistershop
  • 44 likes
  • 2 comments

New unisex toddler tees for sweet & strong little epilepsy warriors!💜 Epilepsy impacts about 300,000 children under the age of 14 just in the USA alone. It’s one of the most common neurological conditions, and causes a variety of seizure types. These toddler tees celebrate your resilient little warrior, while spreading epilepsy awareness💜💪 . . . . . . #epilepsystrong #toddlertees #epilepsy #toddler #epilepsyawareness #epilepsywarrior #epilepsia #littlewarrior #spoonie #spoonies #spoonielife #spooniesisters #spooniestrong #spooniewarrior #neurology #chronicillness #chronicillnesswarrior #seizures #seizure #chronicpainwarrior #chronicpain #spooniemom #epilepsymom #epilepsyfighter #epilepsypositivity #butyoudontlooksick #invisibleillness #invisibledisease #etsyshop #etsy @etsy @printedmint

Sailor || 16 || FL 🦓 media on instagram
@sailors.story
  • 128 likes
  • 8 comments

i’ve been feeling horrible lately.. I have now been living in the same black mold infested house for a little over a month bc of the hurricane. it’s hurting my health more than it already was and i’ve had a headache/migraine for the past five days bc of it. my entire face is breaking out (I rarely ever get pimples or bumps,) i’m waking up with my chest so congested I can’t breath and i’m all around just so fatigued and in pain. I feel like i’m plummeting again.. like i’m gonna end up bed ridden for months on end again. that’s honestly one of my worst fears that i’ll end up like that for a second time... stuck in bed only getting up to used the restroom and never seeing anyone but my mom and dad for months at a time. not knowing what is wrong or how to fix it just grasping at every little pice of hope and info we could get. it was so traumatic and i’m afraid it’s happening again. my stomach problems are coming back and nothing is helping everything is getting worse again and non of it makes any sense. I just found out what all is wrong w me I don’t want to go back to how it used to be when I didn’t know anything and no one could help... my life just started looking up. i was going to go back to public high school and one dance class after christmas break, I was going to start volunteering at a feline sanctuary, and going to the gym to help my joints. everything was going so well.. what happened 😪... i’m sorry for all the negativity in this post but I really just needed to get it out and you guys always help me sm and are always there for me. I hope you all are doing better than I am and have an amazing low symptom day. I love you guys and don’t forget to save your spoons. 💓🥄 #eds #ehlersdanlossyndrome #pots #postie #potsielife #posturalorthostatictachycardiasyndrome #fibromyalgia #ddd #degenerativediscdisease #mcad #mastcell #mastcelldisease #mastcellactivationdisorder #eosinophilicesophagitis #chronicpain #chronicpainwarrior #chronicfatigue #spoonie #spoonielife #spoonies #spoonieproblems #spooniesupport #spooniewarrior #spooniecommunity #spooniegirl #pain #mentalhealth #anxiety #deppression

Remember Me Holt media on instagram
@nativepawsquad
  • 12 likes
  • 0 comments

Day 14. Hospital selfie. I dont take those because if Im there Im usually in pain, getting stuck with needles or labs and I hate hospitals. Like Im scared of them. One too many horror films as a child. And practically growing up in the hospital. I just dont like them. Or needles. Or clowns, unrelated. #spooniechristmaschallenge #spoonieproblems #spoonie #spooniewarrior #spoonielife #chronicwarrior #chronicallyawesome #chronicallyill #chronicillness #chronicpain #invisableillness #copd #asthma #fibro #fibrowarrior #fibromyalgia #justaspoonful #fibroflare #hospitals #hospital #hospitallife

Regenefi media on instagram
@regenefi
  • 1.3k likes
  • 21 comments

Thanks to our @regenefi CBD oil @miss_lorin has not only been able to get her much needed 😴💤 after being in a car accident just a few weeks ago but she is also feeling less pain and more comfort. From everyone here at Regenefi, we hope you continue healing and make a full recovery!! 💚💚💚 --------------------------------------------- visit www.regenefi.com --------------------------------------------- RENEW YOUR LIFE WITH @regenefi RENEW YOUR LIFE WITH @regenefi 🌱 🌱 🌱 #regenefi #regeneficbd #rochesterny #newyork #cbdlife #thcfree #cbd #cannabis #cannabiscommunity #selfcareveryday #cbddrops #cbdinfused #cbdcream #cbdbalm #cbdgummies #anxietyproblems #cbdgummybears #cbdedibles #multiplesclerosisfighter #multiplesclerosiswarrior #fibrosucks #spooniemom #chronicdisease #chronicillness #cbdoil #spooniewarrior #chronicpain #jointpain #kneepain #backpain

jessica 🦄🍭🍩✌🏻🤸🏻‍♀️💗 media on instagram
@runner_girl_runs
  • 54 likes
  • 2 comments

still SHOW UP! 💕

Kiera Sauter media on instagram
@adventuresofaspooniezebra
  • 45 likes
  • 3 comments

When you tell your brother to use up the frosting. I miss my family already! Although having quiet is so nice. My body feels like a dumpster fire right now. Something in my cervical and thoracic (plus the usual lumbar 🙄) spine went out last night and I lost feeling in my left foot, pins and needles in the right, and any time I breathed I got shots of nerve pain through out my spine and arms. Luckily, I fixed my schedule so I am off to see my Chiropractor today. Just praying she can fix it and I can get it to hold for a few days. I still have orders for 4 different MRIs including an upright flection/extension mri, but I’m still not stable enough to travel the 6+ hrs to the closest upright machine. I’m going to hopefully be starting LDN this weekend, as the doctor gave the post op go ahead. I am trying to find energy to contact the specialist about starting the other treatments he had planned in hopes that I will start making some improvements soon. My body feels completely shattered, but I’m trying to stay focused and optimistic. Luckily, if I survive the chiropractor, I get to add some frosting to my day and see Tom, my boyfriend, for the first time since October! We are both beyond excited and he said he will grab an extra box of tissues for the sobfest that is bound to happen :) Happy tears never fear 💜 #chronicillness #chronicpain #degenerativediscdisease #ehlersdanlossyndrome #zebrastrong #zebrawarrior #chiropractor #pwme #myalgicencephalomyelitis #chronicfatiguesyndrome #gjtube #tubie #gastroparesis #dysautonomia #posturalorthostatictachycardiasyndrome #potsie #potsiegirl #potsiestrong #mcas #mastcellactivationdisorder #lowdosenaltrexone #neuropathy #spoonie #spoonielife #spooniewarrior #spooniestrong

The Unchargeables media on instagram
@theunchargeables
  • 121 likes
  • 0 comments

Caffeine, don't fail me now! - CJ ------------------------------------------------ 🌟WIN unique chronic illness clothes from the Unchargeables shop! Link to giveaway in bio. ------------------------------------------------ #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior #chroniclife #autoimmunedisease #chronicillnessawareness #anxietywarrior #sicklife #disabledandcute #invisibleillnessawareness #disabled #zebrastrong #spooniesunite #raiseawareness #butyoudontlooksick #disabilityawareness #invisibledisability #chronicpainwarrior e Trust

Kyra Monk media on instagram
@chronicillnesschemist
  • 18 likes
  • 0 comments

Having to miss work today after a migraine and flare up of pericarditis add in a cough that worries me and no sleep. I hate the guilt I feel in missing work. #chronicillness #chronicillnesswarrior #spoonielife #spoonie #spooniestrong #outofspoons #medical #pericarditis #invisibleillness #dysautonomia #autoimmunedisease #spooniewarrior #lupus #disabled #afib #pacemaker #mcas #migraine #chronicmigraines

chronically chic media on instagram
@chronically_chic
  • 40 likes
  • 0 comments

🌷✨ a little throwback to the flowers @roz18 sent to me while I was feeling not my best✨🌷 Honestly as a spoonie/ chronic illness warrior, having support from friends and family is the best! • • • #flower #flowerarrangement #flowers #getwellsoon #crohns #crohnsdisease #crohnsawareness #chronicallychic #autoimmunedisease #spoonie #spoonielife #spoonieproblems #spooniesupport #spooniewarrior #spoonielove #autoimmunediseasewarrior #fibro #chronicillness

Chronically Caffeinated ☕️ media on instagram
@chr0nicallycaffeinated
  • 48 likes
  • 2 comments

A shake a day keeps the hunger at bay 🍌 . I’ve been loving having a green smoothie for breakfast each morning. I used to make them without protein powder and felt hungry almost immediately after finishing it. Having some protein powder that’s began, GF, soy free, and organic has done wonders to boost my morning 😌✨ . Do you have protein smoothies at all during the week? Mine has: •1 banana •1/2 cup frozen mango chunks •1/2 cup almond milk •1 scoop @alohamoment vanilla protein powder •a handful of spinach •1 tbsp of ground flax

Sick B*tch media on instagram
@chronically.sam.pt2
  • 22 likes
  • 0 comments

The tint in my glasses hides the fact that I’m crying :’) — Basically, all that came from that appointment was -You’ve gotten too fat -Oh and there’s nothing we can do about any of your problems, but we can give you mORE ANTI DEPRESSANTS!1!1! — The doctor did order an allergy test about the hives and an ultrasound on my adrenal glands but she doubts that those will provide any answers either. The antidepressants could help numb the pain but they’ll also make me gain more weight, more tired and interfere majorly with my mental health because it would be too high of a dosage so I’m not increasing the dose. (I am increasing my allergy meds) — I feel hopeless, there’s nothing to be done for me, I’m exhausted, every day I feel like my brain function is deteriorating, im in pain and there’s NOTHING that can help me. I’ll just keep getting worse — I can’t wait for the day I die. I’m behind in school and barely have the energy/clarity to process the material anyway when I do go. I used to be so smart, now I’m disappointing my mother and she shows it. I’m just going to keep falling behind in life until I’m nothing — #spoonie #spoonielife #spoonieprobs #spoonieproblems #spooniewarrior #spooniecommunity #chronicillness #chronicillnessawareness #chronicpain #chronicpainawareness #chronicpainwarrior #ibs #oralallergysyndrome #chronicmigraines #medicalmystery #chronicfatigue #fibromyalgia #fibrowarrior #pots #mentalhealthawareness #autismawareness #autismacceptance

Twitter: @Not_Just_Tired media on instagram
@notjusttireddotcom
  • 73 likes
  • 3 comments

#joyinwinter ~ a peaceful moment by the canal the other morning.

Sick B*tch media on instagram
@chronically.sam.pt2
  • 21 likes
  • 0 comments

I know I look like I got hit by a bus, but I feel like it too — I’m at the hospital for a doctor’s appointment, just a follow up on my blood work. But I’m gonna also talk to her about my tics, my heart rate, the exhaustion and the fact that I’m always covered in hives — #spoonie #spoonielife #spoonieprobs #spoonieproblems #spooniewarrior #spooniecommunity #chronicillness #chronicillnessawareness #chronicpain #chronicpainawareness #chronicpainwarrior #ibs #oralallergysyndrome #chronicmigraines #medicalmystery #chronicfatigue #fibromyalgia #fibrowarrior #pots #mentalhealthawareness #autismawareness #autismacceptance

Fibrotastic Mom media on instagram
@fibrotastic_mom
  • 48 likes
  • 3 comments

Good morning! . I'm not sure about you but seeing all of the posts of everything everyone else is doing sometimes gets to me. I don't have the spoons or the money to do or get half of the things that some of these people do. Then I remembered, I don't have to. My kids and I bake, make homemade scrubs and crafts for others, curl up on the couch with hot cocoa and watch Christmas movies, and most of all enjoy each other. If you ask my kids, they're content and happy with just that. The warm cocoa, the only lights are the ones from the tree and lights on top of the cupboards. It's magical. . Seasonal depression is real. Don't let those who post every happy tidbit of their lives bring you down. I know a few families who throw themselves into debt during the holiday season. Maybe it's best to practice being minimal around this type of year. Presence over presents my friends. . . . . . #fibrotasticmom #fibromyalgiawarrior #presenceoverpresents #chronicpainlife #fibroproblems #spoonie #spoonielife #spoonieproblems #spooniewarrior #fibromom

°Цель 10 к™ 😍😎 media on instagram
@mladshiiiy_13
  • 50 likes
  • 1 comments
°Цель 10 к™ 😍😎 media on instagram
@mladshiiiy_13
  • 53 likes
  • 1 comments