@sickbed.princess
  • 11 likes ||
  • 0 comments ||
  • 1 hours ago

MASSIVE BIRTHDAY UPDATE! Since I'm going to be seeing a cannabis specialist on Tuesday, my 26th birthday, I decided to have the celebration a bit early this year. Thus far I've received a lovely tie dying kit, an incredibly expensive box of chocolates, and a set of Lisa Frank stickers which I used to decorate my vape. Except for a slight stomach ache, which I don't believe to be related to CHS, I've had a pretty good day today. But if you have lupus or a similar autoimmune disease, please don't do what I did and spend all afternoon lying out in the sun. I'm certain I'm going to be paying for it, even with my SPF 110 and my canopy. #chronicillness #chronicinsta #spoonie #spoonieproblems #spooniewarrior #lupus #lupuswarrior #invisible #invisibleillness #spoonielife #chronicallyill #chronicillnesswarrior #fatigue #uctd #malarrash #butterfly #CHS #cannabinoidhyperemesissyndrome

Rachel Parker media on instagram
@spooniecorn
  • 17 likes ||
  • 2 comments ||
  • 2 hours ago

@planyourspoons is launching her new spoonie chibi line and omggggg I'm so excited! πŸ‘‡πŸ» details below πŸ‘‡πŸ» #Repost @planyourspoons (@get_repost) ・・・ I'm really excited to announce my Spoonie Chibi line! With artwork done by the amazing Stephanie Martinelli of TOONdoodles on Etsy Customize your Chibi's skin, hair and if they have glasses and a service dog. Two poses available, with a spoon or with a planner and new poses monthly. Currently available on my website! www.planyourspoons.com #planyourspoons #spooniechibi #spoonie #chronicillness #disability #serviceanimals #planner #plannerstickers #chibiart #customize #representationmatters #inclusionmatters #plannercommunity #spooniewarrior #chronicillnesslife

thriceexceptionalspoonie media on instagram
@thrice_exceptional_spoonie
  • 5 likes ||
  • 0 comments ||
  • 2 hours ago

After some sleep (thank you meds) and some awesome cat cuddles (thank you honey) my equilibrium has returned. Here's a revised version of how I'm feeling... At least I got my humour back πŸ™‚ #fibrowarrior #fibromyalgia #fibrowarrior #spoonielife #spooniewarriors #spooniehumour #spoonie #spooniewarrior #spoonieteacher

Our Chronic Illness Safe Space media on instagram
@thechrillness
  • 23 likes ||
  • 1 comments ||
  • 3 hours ago

So very buzzed to announce the launch of @thehealhive β€˜s new digital home! This is for everyone who has struggled with #chroniclyme - and especially those who have reached out to me with questions about #beevenomtherapy , my own treatment protocol and the only thing that has improved my health for the better (including IV antibiotics, 3 years of orals, hyperbaric, pemf, etc). . One of my favorite things about #healhive ? @everydayexpert made sure that it was built entirely by #lymies (and yours truly did the web design!). With so many of us struggling to support ourselves and/or grappling with issues of self-worth and purpose, that small decision was a true gift that I will forever cherish. . . Now fly on over to thehealhive.com (link in my bio) and see what all the buzz is about (it’s even featured in @nytimes this weekend)!! #apitherapy will change your life; it’s certainly changed mine. 🐝🐝🐝

πŸ¦‹πŸ’šJennifer Koshinski DahnπŸ’šπŸ¦‹ media on instagram
@living.with.grit.and.grace
  • 27 likes ||
  • 3 comments ||
  • 4 hours ago

Here’s hoping that I can keep the flowers I just planted on my front porch alive longer than a week! #livingwithgritandgrace #flowers

@joannebecker_
  • 36 likes ||
  • 3 comments ||
  • 4 hours ago

First trip to NYC: five days and six nights away + pretty much 7 days for my body to recover. Oops! 😬 While I had an amazing time exploring an amazing city, I took the wasted muscles in my legs to their absolute limit... Turns out that even fulfilling a dream can teach me something! So next time I go on a busy city break I will continue to do as much as I can while I am at my strongest, making the most of opportunities, but I will also try to build in a rest day mid-trip, and / or give myself a few days of 'buffer' when I get home for recovery. Always readjusting. Always finding a new balance. But not giving up just yet. And this weekend feeling grateful to not feel exhausted anymore!! . #musculardystrophy #chronicillnesswarrior #chronicillnessfighter #raredisease #disabilityawareness #disabledlife #spooniewarrior #disabilityisnotinability #iamadaptive #thisgirlcan #thisgirlwill #icanandiwill

EndoLife media on instagram
@living_endo
  • 24 likes ||
  • 3 comments ||
  • 5 hours ago

After hard day just walking in silence with my dog. Oh, silence feels so damn good. No doctors, no bad news, just walking with no reason. Call me crazy but i find peace with no words. #endowalk #endoblog #endobelly #endoawareness #endometriosisawareness #peacefull #dogismycopilot #doglove #badnews #endoworld #endosisters #endosucks #endosurgery #infertility #1in8couplesbattleinfertility #peacefulevening #endowomen #endowarriors #butyoudontlooksick #chronicpainawareness #stopendosilence #endometriosiswar #spooniewarrior #outofspoons #πŸŽ—

Sarah || Spoonie πŸ₯ media on instagram
@fighting_potsie_
  • 98 likes ||
  • 3 comments ||
  • 5 hours ago

Throwback pic of me last summer, in this picture there is so much you can’t see. You can’t see the pain in all my joints and in the nerves in my legs, you can’t see my bloated stomach and painful cramps, you can’t see the racing heart rate and low blood pressure. A smile can hide so much that’s going on inside. . . . . #chronicpain #chronicillness #spoonie #spoonielife #spooniewarrior #asthma #sciatica #ibs #depression #quotes #fibromyalgia #fibromyalgiaawareness #fibro #fibrowarriors #fibrofog #hypermobile #hypermobility #invisibleillness #fibromyalgia #fibro #hypoglycemia #hypo #spoonieproblems #spooniestrong #spooniesunite #pots #posturalorthodontictachycardiasyndrome #lupus

 media on instagram
@oh_chronicpain
  • 228 likes ||
  • 11 comments ||
  • 6 hours ago

This has been so hard for me to learn. I have to keep reminding myself that muttering, β€œI’m fine” and expecting people to be mind readers isn’t going to get me anywhere. This is something I struggle with daily though, it’s so hard. For now, I take it one day at a time. #chronicillness #chronicpain #chronicfatigue #invisibleillness #invisiblefight #ra #chronicallyill #spoonie #spooniestrong #spoonielife #spooniesupport #spooniewarrior #butyoudontlooksick #StrongerThanYouThink

@inked_fibro_warrior
  • 24 likes ||
  • 1 comments ||
  • 7 hours ago

Got to get out for breakfast so I had to dress upπŸ’– When I saw this dress it automatically reminded me of my Grandmother. It makes me feel like a southern belle and it's the same color as our dresses from her wedding all those years ago❀❀❀ #ilovemygrandma #selflove #fibromyalgiawarrior #butyoudontlooksick #fibromyalgiaisreal #fibromyalgiaawareness #fibroface #inkedfibrowarrior #spoonie #spooniewarrior #spoonieselfie #spooniewitch #chronicpainawareness #chronicillnesswarrior #chronicillnessawareness #chronicpainsucks #chronicpain #chronicpainwarrior #invisibleillnesswarrior #invisibleillnessesarereal #invisibleillnessawareness

Crystal Perry media on instagram
@crystalperryaz
  • 39 likes ||
  • 0 comments ||
  • 9 hours ago

Awake to new beginnings, restored hope and strength. . . So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand. Isaiah 41:10 ... . . I have been talking with many warriors who are struggling something fierce right now and my heart is broken. I have many close to me who lost their parents this week and I’m crushed. . . Today I woke up with the strongest urge to pray over these women ... who need peace and strength that surpasses all understanding. Only the Lord can give, and only when you’re walking through the fire. . . . . . . . . #godsword #hismercy #blessed #blessedwife #pray #prayforothers #spoonie #spoonielife #spooniewarrior #multiplesclerosiswarrior #mswarrior #takethatms #fums #mssucks #workout #homeworkout #workoutathome #fightback #chronicpain #momlife #momof4 #fitmom #momswhoworkout #workoutmom #momofspecialneeds #cerebralpalsy #autism #multiplesclerosis #fibromyalgia

The Unchargeables media on instagram
@theunchargeables
  • 359 likes ||
  • 14 comments ||
  • 9 hours ago

Good Morning Chargies! Yes, we hope you have a lower pain day for you πŸ’œ what are you up to today?~Nicole~ . β€”β€”β€”β€”β€”β€”β€”β€” .β €β €β €β €β €β €β €β €β € 🌟 WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio.🌟 #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior #chroniclife #autoimmunedisease #chronicillnessawareness #anxietywarrior #sicklife #disabledandcute #invisibleillnessawareness #disabled #zebrastrong #spooniesunite #raiseawareness #butyoudontlooksick #disabilityawareness #invisibedisability #chronicpainwarrior #crps #lupusawareness #autoimmune #spoonielife

@beautybooksbattler
  • 29 likes ||
  • 4 comments ||
  • 11 hours ago

#warpaintoftheweek time!!! I use #makeup as #warpaint to help me deal with my #chronicpain and #chronicillness . Each week I randomly select an eyeshadow from my collection to use everyday. β€’ This week I drew Atlantis from the Lorac Shine Bright Pro eyeshadow pallet. This was their holiday 2018 release. This is going to be a very challenging week because, well, it’s a aqua/teal shade. Not the easiest color to wear everyday. Which is a great transition (ba dum hit) to what I have been considering for a while. β€’ Starting next month this project will be changing. Instead of drawing one eyeshadow to use everyday, I will be drawing one pallet from my collection to use everyday for the week. This is closer to what I have been doing since I typically use the entire pallet the eyeshadow I drew comes in. Also it will give me more freedom while letting me feel like I am using more of my collection. Each new week I’ll tell you what shades I used the most and what I think of the pallet. I’ll also say what pallets, if any, I pulled to help me complete the look. Since I know I have a whole shelf full of pallets it will be a long while before I would have to start over again. β€’ Last week I drew Moon Rock from the Urban Decay Elements pallet (another 2018 holiday release). I like the shade but I’m not sure how I feel about the pallet as a whole. Sometimes it looked great but others it would get patchy or muddy throughout the day. I don’t know if it’s the formula, me feeling so poorly last week, or me not using my favorite brushes so it actually started out muddy/patchy and I just didn’t notice. For now I’m keeping it but I’m looking forward to when this gets pulled next so I can learn more about it. β€’ #chronicpainfighter #chronicillnessfighter #chronicpainwarrior #chronicillnesswarrior #spoonie #spooniefighter #spooniewarrior #zebra #zebrawarrior #chargie #projectpanning #projectpan #projectpancommunity #projectpanningcommunity #useitorloseit #eyeshadow #eyeshadowpalette #lorac #loracshinebright #urbandecayeyeshadow #urbandecayelements #urbandecay #loraccosmetics #loraceyeshadow