Bridie Apple media on instagram
@bridieapple
  • 24 likes
  • 1 comments

This gif makes me very happy 😊🙏🌈🧚 . I'm sat here this morning over whelmed with #adenomyosis Pain and I can literally feel my womb expanding and I'm having to put on a larger pair of PJs when I should be putting on my jeans to get ready for the day. But this little gif reminds me that I'm surrounded by amazing women and men at the moment and we are all supporting and helping lift each other up not push each other out the way. So big shout out to all you awesome people and bare with me once the pain has eased I will be right back with you. Much love B xx . . . . . . . . . . . . . . . ❤️ #health #chronicpain #chronicpainwarrior #toptags @top.tags #chronicpainawarness #chronicillness #invisibleillness #chronicpainsurvivor #endurance #survive #invisibleillnessawarness #fatigue #disability #smilethroughthepain #spoonie #spoonielife #chromicfatigue #spoonieproblems #cfs #pain #chroniclife #spooniewarrior #spooniestrong #painsucks #autoimmune #fibromyalgia #crps #heretohelp #painwarrior

Amanda Boo media on instagram
@mindymandaboo
  • 20 likes
  • 0 comments

Hopefully we’re going to the pet shop today. But Wayne has woken up feeling worse so it might be a home day for us❤️❤️❤️❤️❤️❤️❤️❤️❤️ #drawingmylife #drawing #illustration #illustrator #characterdesign #doodle #dailydoodle #spoonielife #spooniewarrior #spoonies #chronicallyawesome #chronicillness #fibromyalgia #chronicfatigue #autoimmune #butyoudontlooksick #invisibleillness #multiplesclerosis #ms #spoonies #selflove #loveyourself

Warriortees| Sam media on instagram
@warriorteesuk
  • 26 likes
  • 0 comments

❤❤❤ i love seeing everyone's shares. #repost @laurawantsmore (@get_repost) ・・・ A night of next to no sleep...... when I did sleep it was broken and in small chunks and then to wake up at the crack of dawn and be wide awake 😫 At least today I get to see 2 of my favourite humans for a trip to the cinema 💜 - Yet another @warriorteesuk purchase of mine! I specifically bought this t-shirt in a bigger size so I could wear it as PJs 😬😬 - - - - - - - - - #warriortees #warrior #batshitcrazy #tshirt #tshirtdesign #sleepyface #sleepy #sleepingbeauty #tired #exhausted #fatigue #fatigued #mentalhealh #mentalilness #depression #anxiety #invisibleillness #mecfs #myalgicencephalomyelitis #spoonie #spooniewarrior #glassesgirl #purplehair #girlswithtattoosandpiercings #altgirl #poppunkgirl #inkedgirls #selfie #poser

Laura Hitchcock ☮ media on instagram
@laurawantsmore
  • 23 likes
  • 0 comments

A night of next to no sleep...... when I did sleep it was broken and in small chunks and then to wake up at the crack of dawn and be wide awake 😫 At least today I get to see 2 of my favourite humans for a trip to the cinema 💜 - Yet another @warriorteesuk purchase of mine! I specifically bought this t-shirt in a bigger size so I could wear it as PJs 😬😬 - - - - - - - - - #warriortees #warrior #batshitcrazy #tshirt #tshirtdesign #sleepyface #sleepy #sleepingbeauty #tired #exhausted #fatigue #fatigued #mentalhealh #mentalilness #depression #anxiety #invisibleillness #mecfs #myalgicencephalomyelitis #spoonie #spooniewarrior #glassesgirl #purplehair #girlswithtattoosandpiercings #altgirl #poppunkgirl #inkedgirls #selfie #poser

@fibrofoodfairy
  • 27 likes
  • 0 comments

BERRY BAKEWELL BREAKFAST BOWL. DAIRY FREE. GLUTEN FREE. VEGAN. . This recipe was inspired by the classic bakewell flavours of cherry and almonds. . I have gone a step further by including strawberries and blueberries to the compote that is stirred through gluten free porridge oats turning it a vibrant purple colour. I have used dairy free almond milk and crunchy, toasted almonds sprinkled on top as a nod to the bakewell flavour combination. . Easy and quick to make. No culinary skills required. Full of antioxidants, why not give your breakfast a berry boost. . #berries #breakfast #glutenfree #dairyfree #porridge #cherrybakewell #cherries #antioxidants #healthymeals #vegan #spoonie #spooniewarrior #fibromyalgia #fibrofood #instafood #allergyfree #chronicpain #chronicfatigue #fibromyalgia #chronichealth #blueberries #superfood #strawberries #easyrecipes #comfortfood #easymeals

The Unchargeables media on instagram
@theunchargeables
  • 45 likes
  • 0 comments

You got this, keep going! -CJ ------------------------------------------------ 🌟WIN unique chronic illness clothes from the Unchargeables shop! Link to giveaway in bio. ------------------------------------------------ #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior #chroniclife #autoimmunedisease #chronicillnessawareness #anxietywarrior #sicklife #disabledandcute #invisibleillnessawareness #disabled #zebrastrong #spooniesunite #raiseawareness #butyoudontlooksick #disabilityawareness #invisibledisability #chronicpainwarrior

Laura media on instagram
@dr.spoonie
  • 29 likes
  • 0 comments

I find it helpful to work backwards with this one... If you know you need to CHANGE something, big or small, identify the CHANCE you need in order to make that change - that opportunity, that risk, that leap - and then CHOOSE that chance - take it, commit to it and watch the change unfold. #spoonie #spoonielife #thespooniesisterhood #spooniesupport #spooniecommunity #spooniewarrior #spooniefamily #spoonielove #invisibleillness #invisibleillnessawareness #chronicillness #chronicillnessawareness #chronicpain #chronicillnesswarrior #chronicillnesslife #chronicfatigue #chronicfatiguesyndrome #mecfs #cfs #migraines #ibs #arthritis #mentalhealth #myalgicencephalomyelitis #depression #anxiety #ocd #insomnia #healing #bethechange

Grace, 23, 🇦🇺 media on instagram
@planet.migraine
  • 11 likes
  • 1 comments

Hehe guys - it’s my 3 year anniversary with my partner! I love him so much and he is always reminding me to go easy on myself and love myself just the way I am. He has made living with chronic migraines so much better, even when he doesn’t know what to say or how to help, knowing that he loves and cares for me is enough. We’re going out to dinner tonight to celebrate and I am so excited! I am going to give this night all my energy, because I’m not always in a position to give it to him. I’m on my way to dinner now and I can’t wait to see him! Wish me luck!! . . . . . . #spooniewarrior #chronicillnesswarrior #wellnessjourney #chronicmigraine #migraine #chronicillness #spoonie #migrainewarrior #loveconquersall #wellness #thankfulthursday

Elevacity media on instagram
@smartcoffeeelevate
  • 20 likes
  • 2 comments

Do you need more focus? Does your brain feel way to busy but you’re not getting everything you want done? This is a real problem so many people struggle with! Do you know why?

@permanetly_exhausted
  • 19 likes
  • 0 comments

Day 20/28 of Spoonie Essentials are Barf Bags and trash cans 😅 I know, gross. But the reality for many of us suffering from chronic illness is that we puke. A lot. I am actually fairly lucky in that I rarely actually vomit. But there are many many days where I am gagging and laying in bed or working with the trash can next to be just in case. In my car I have a little cardboard box with plastic store bags in it that I use for garbage and in case of emergencies, vomit. I also sleep with a small trash can next to me because my nausea is most intense during my stomach attacks that wake me up in the middle of the night. Usually I can prevent vomitting if I just don't move at all, but I would rather be safe than sorry. You can actually buy the little sick bags they give you at the hospital or doctors office online and keep those with you too. I keep one in my backpack or purse at all timesneven though I've never had to use it there have been plenty of days where I've got it read to go just in case. Vomitting is a part of chronic illness and can be super gross, inconvenient, and embarrassing. All of those things are minimized by being prepared with disposable sick bags. You gotta do what you gotta do and at least these give me peace of mind that I won't puke on my bed or the floor 😅 #chronicillness #chronicillnesslife #chronicillnessblogger #chronicillnesswarrior #chronicillnesscommunity #thisischronicillness #spoonie #spoonielife #spooniewarrior #spoonies #spooniecommunity #spooniegirl #spooniestrong #beprepared #bettersafethansorry #butyoudontlooksick #invisibleillness #gastroprobs #gastroparesis #ibs #ibd #chrons #ulcerativecolitis #recovery #healing #health #spoonieessentials #lifehacks #permanentlyexhausted

r a c h 🌸 media on instagram
@teespoonies
  • 67 likes
  • 2 comments

🦋 you are 🌟

Wellacopia media on instagram
@wellacopia
  • 23 likes
  • 0 comments

Are you looking for a new doctor or wellness practitioner? ✋⁣ .⠀⁣ Find your ideal practitioner 👨🏻‍⚕️👩🏼‍⚕️💜----> Wellacopia.com ⭐️🥰👏🏼⁣ .⠀⠀⠀⁣ . ⠀⠀⠀⁣ #wellnessinspiration #wellspo #autoimmunewarrior #spooniewarrior #spooniesisters #spooniesunite #spoonieprobs #spooniesupport #spoonietruth #spooniecommunity #chronicdisease #invisibledisease #spooniefamily #chroniccondition ⠀⠀⠀⁣ #spoonie #spoonies #spoonielife #chronicillness #chronicpain #invisibleillness #disability #chronicallyill #wellnesswarrior #wellness #autoimmune #autoimmunedisease #fibrowarrior #fibromyalgia #spoonieproblems 👭👬👭👬👭👬👭👬👭👬👭👬👭👬⁣ .⠀⠀⠀⁣ .⠀⠀⠀⁣ .⠀⠀⠀⁣

Somnath Jana media on instagram
@they_say_i_m_awesome
  • 15 likes
  • 3 comments

PLEASE HELP THIS GIRL! SHE DESERVES A LIFE TOO! PLEASE DONATE FOR THIS GIRL! AGED ONLY -1 YEAR 7 MONTHS SUFFERING FROM LIFE THREATENING CANCER! HURRY PLEASE. SHE TOO DESERVES A LIFE! Please visit my bio in insta to get the link.As the link cannot be accessed through post..please check my bio. https://blnk.in/0bImjd ❤️ #health #chronicpain #chronicpainwarrior #toptags #chronicpainawarness #chronicillness #invisibleillness #chronicpainsurvivor #endurance #survive #invisibleillnessawarness #fatigue #disability #smilethroughthepain #spoonie #spoonielife #chromicfatigue #spoonieproblems #cfs #pain #chroniclife #spooniewarrior #spooniestrong #painsucks #autoimmune #fibromyalgia #crps #heretohelp #painwarrior

The Unchargeables media on instagram
@theunchargeables
  • 51 likes
  • 1 comments

Rachel in her "low spoon warning" tank: now available from our shop. Great photo, Rachel! -CJ ------------------------------------------------ 🌟WIN unique chronic illness clothes from the Unchargeables shop! Link to giveaway in bio. ------------------------------------------------ #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior #chroniclife #autoimmunedisease #chronicillnessawareness #anxietywarrior #sicklife #disabledandcute #invisibleillnessawareness #disabled #zebrastrong #spooniesunite #raiseawareness #butyoudontlooksick #disabilityawareness #invisibledisability #chronicpainwarrior

Blooming Warrior media on instagram
@warriorblooming
  • 29 likes
  • 3 comments

Sick and tired of being sick and tired. Yall. This is no joke. I'm going insane crashing again. This disease is horrible. It has robbed me of my life, my health, my energy, my sanity. Yeah, I'm grateful, but it's hard not to be pissed off too. Why in the HELL is Myalgic Encephalomyelitis not on doctor's radar?! Why is there no cure?! Wanting to throw everything across the room, but currently trying not to fall when walking to the bathroom. Trying to keep stress down. I literally feel it drain me. UGH! #myalgicencephalomyelitis #canyouseemenow #cfsme #chronicallyill #chronicillness #chronicpain #chronicfatiguesyndrome #pots #potsie #spooniewarrior #spoonie #chargie #invisibleillness #butyoudontlooksick #tinnitus #nap #living #ugh #awareness #staywoke #wakeup #rmsf #disease #lyme #educate #help #timeforunrest #millionsmissing

Emily B. media on instagram
@emmy_inspired
  • 80 likes
  • 8 comments

What is tenacity? @peoplehopeorg ‘s challenge for this month was to find tenacity within ourselves. I thank you, @peoplehopeorg , for challenging me to find the determination in myself that I’d been lacking. As I’ve been going through this month, I’ve found that tenacity comes in many different forms. Each day brings a new challenge- a new chance to find the warrior within us. Every morning we face a new Mount Everest along with the opportunity to discover the greatness within us. Whether your Mount Everest is going to work, or whether it’s simply finding a smile that’s deep inside you, you were made to be a warrior, and you have the ability to do so much more than you realize. I believe in you! You who are bedridden, hopeless, or afraid of the future... I believe in you! I believe that you can find the tenacity in you no matter your circumstance. Don’t give up! You have so much to give the world, and I KNOW you have the hope, deep inside you, to keep going. • “May the God of hope fill you with all joy and peace as you trust in Him, so that you may overflow with hope by the power of the Holy Spirit.” - Romans 15:13 #vasovagalgal #peoplehopetribe #chroniccommunity #chronicloveclub #fightlikeagirl #tiredgirlsociety #lymedisease #lymediseaseawareness #lymewarrior #lymedontkillmyvibe #potssyndrome #potsie #potsiestrong #potsielife #potsiegirl #chronicillness #chronicillnesswarrior #spoonie #spoonielife #spooniecommunity #spooniewarrior #spooniesisters #lymetreatment #lymestrong

Scarlett media on instagram
@_journeythroughthevalley
  • 13 likes
  • 2 comments

This was in my new Drs office!😍🙌🏻 I must say this is one of the best visits I’ve ever had with a Dr. Now, I haven’t had lots of really bad experiences like so many of you have, (thankfully) but I truly felt like Dr. Elliott cared and believed everything I said. She validated my symptoms and is going to do lot of things I’ve wanted done for a long time. She took almost an hour to go over my history with me and did a quick neuro exam. I go back Monday for a full check up. I feel like we’re finally going to move forward, even though we’re basically starting from scratch . Rest of update in my stories, or highlighted under “Fresh Start” . . #physiciansprayer #chronicillness #chronicpain #chronicfatigue #fibrowarrior #chronicpainwarrior #spoonie #spoonielife #spooniewarrior

Chronically Ella media on instagram
@sickbed.princess
  • 13 likes
  • 1 comments

It's been a really rough, disorienting few days. I had the flu so I was on the couch while my husband (who is now immune to the strain we had looked after me. He brought me tea and made me soup and we watched movies together. It was so sweet. I'm on the road to recovery, I think. #chronicillness #chronicinsta #spoonie #spoonieproblems #spooniewarrior #lupus #lupuswarrior #invisible #invisibleillness #spoonielife #chronicallyill #chronicillnesswarrior #fatigue #flare

Laura media on instagram
@sawdustandspoons
  • 13 likes
  • 0 comments

Another day, another ramble video. Part of me wants to apologise for that being the case. Yet these are supposed to be live snippets into my day and as such I don't work out what I'm going to say till the words spew forth. #chronicillness #chronicillnesswarrior #chronicpain #invisibleillness #chronicillnesslife #spoonie #chronicpainwarrior #spoonielife #chronicillnessawareness #depression #chronicpainawareness #spooniewarrior #pain #butyoudontlooksick #chronicillnessfighter #invisibleillnesswarrior #invisibleillnesses #chronicillnessquotes #chronicillnessproblems #chronicillnesscommunity #autoimmunedisease

Darah media on instagram
@faith_and_flow
  • 29 likes
  • 0 comments

Yoga setup: Salt lamp ✅ Essential Oil Diffuser ✅ Yoga platform ✅ Yoga mat ✅ Radiator heater ✅ Yoga video ✅ Foam blocks ✅ Yoga Cat 🐈 READY!! . . . #yoga #yogi #yogateacher #yogaathome #homeyogastudio #yogaplatform #yogamat #manduka #diffuser #saltlamp #chronicillness #dysautonomia #fibromyalgia #calfcompressionsleeves #christianyoga #yogafaith #holyyoga #spoonie #spooniewarrior

Connie Wardale media on instagram
@memyselfand_m.e
  • 36 likes
  • 0 comments

Hey guys! So today hasn’t actually been too bad it’s ended on a high so that’s always good☺️ I slept until 1pm I’m still not feeling great tonsillitis wise so just giving my body lots of rest. I had my ECG at 2:30pm my brother came with me which was really nice. The nurse seemed concerned and said it seemed erratic and kept trying to redo the reading but just said looks like this is the best we’re going to get and then printed it off and took it to the doctor but the doctor said it seemed ok. So I don’t know 🤷🏼‍♀️ feeling a little disappointed as it’s just another symptom added to the list that my anxiety is apparently causing. I then got home and rested for a while. Then me and Jack met up with out friends Kieran and Alice and our godchildren Archie and Ivy. We always have such a lovely time together. We manage to see them pretty much every other week sometimes more which is so nice. Ivy is really starting to grow now and it’s so lovely we get to see her and be a part of all of that. I feel so lucky to have two perfect godchildren and to have such a lovely relationship with them both🥰 I’m so proud of myself for how positive I’ve been staying lately despite everything going on. Sending love and spoons❤️🥄 #butyoudontlooksick #invisibleillness #myalgicencephalomyelitis #chronicillness #chronicpain #chronicfatigue #cfsme #spoonie #spooniesupport #spreadingawareness #spoonielife #canyouseemenow #mentalhealth #deppression #mentalhealthawareness #video #vlog #vlogger #videodiary #positive #weightlossgoals #weightloss #weightlossjourney ##weightlosstransformation #weightlossmotivation #rest #selflove #warriors #spooniewarrior #millionsmissing

FlashYourFlesh media on instagram
@flashyourflesh
  • 25 likes
  • 2 comments

The Fatigue and exhaustion has been in a full force loop. I’m just imagining that wheel that says loading but just gets stuck spinning and spinning without loading. - Insomnia is tricky in this situation because it doesn’t matter how fatigued I am or how sleepy I am, I stay wide awake at night! Insomnia’s something I’ve had for most of my life and i’ve tried so many things to help including sleep hygiene and I avoid naps like the plague because they make sleeping at night even more challenging. . - I’m trying something new called Insozia, which is a natural herbal extract that is known to help with insomnia, going to give that a go and see if it helps. 🤞🏽 . . . . . #chronicillness #chronicallyill #myalgicencephalomyelitis#mentalhealthawareness#spoonielife#butyoudontlooksick#insomnia#anxietysupport#thegirlgang#empowering#spooniesupport#caturday#invisibleillness#spoonie#selfcare#chronicfatigue#insomniasucks#chronicillnesswarrior#cfsme#lbloggersuk#loveyourpetday#spoonieproblems#mentalhealthsupport#selfhelp#spooniewarrior#spoonielife#healing#cfsrecovery#myalgice#chronicpain#fatigue

Laura media on instagram
@dr.spoonie
  • 52 likes
  • 8 comments

Some days are hard work, like wading through treacle. You're physically, mentally and/or emotionally drained. You just want to curl up and hide. Forget that the world exists. And guess what?! THAT'S OKAY!!! These days are more likely to come around when we've lost touch with ourselves. We're perhaps caught in a self-perpetuating busy-tired-emotional cycle that's often fuelled by underlying stress which prevents us from connecting with our true, authentic self. Often, the more emotional we become the busier we make ourselves so that we don't have to sit and "be" with those difficult emotions. We shift away from our centre and our body and mind become fragmented and misaligned. We're out of sorts. The more we try to ignore it, the more imbalanced we become. When we push back against it, we exacerbate the issues further. It's an internal battle. So, what to do? STOP! Stop what you're doing, stop what you're thinking and LISTEN! Listen to how you're feeling. Listen to the voice behind your feelings. Listen to what's really there, underneath the "be strong" persona. More often than not, it's a younger, more vulnerable part of ourselves that needs our attention. He/she is likely to be scared and alone. He/she needs you more than ever. This is me, on one of those days recently. I stopped, listened and heard my inner-child. She was young and fragile. She wanted to find a safe space in which she could retreat from the world. Space to relax and switch off from societal pressures. Space to let go of the person everyone else wants her to be so that she can just be her raw, authentic self. Space to be. Space to breathe. Once I had granted her that space, she was free. She wanted to sit and draw. And so I did just that. The drawings had a child-like innocence to them, and for that reason they were perfect. I had come home to myself. I was present. I was centred. I was bathing in deep peace. It was wonderful. . . . 📷 @jeff_murray_art

Spoonie Sister Shop | Michelle media on instagram
@spooniesistershop
  • 126 likes
  • 2 comments

Repost from @rebellious_story 💗 . “ ‘Disabled and cute’ . An important reminder for all of us that disabled bodies can be beautiful, cute, pretty, lovely, happy, positive, etc. Disabled bodies are just as human as everyone else. . We’re off on another painful medical trip this week as I go through several days of being tested, poked, and prodded, I want to remember my humanity, and keep my confidence. I always try to find ways to boost my self worth and give me a smile during the day. . . This hoodie definitely helps with that endeavor. 💗 Do you have certain outfits that help you feel ready to take on the world?” . . . . . . . #spoonie #disability #chronicillness #chronicpain #medicaltravel #tubie #feedingtube #wheelchair #mastocytosis #mastcelldisease #mcas #zebrastrong #ehlersdanlos #healthbeme #webewarrior #babewithamobilityaid #cute #spooniesisters #spoonies #spoonielife #spoonieproblems #spooniestrong #chronicpainwarrior #chronicillnesswarrior #chronicallyfabulous #spooniewarrior #invisibleillness #butyoudontlooksick #chronicallyill #spooniecommunity

Sam media on instagram
@chronically.sam
  • 21 likes
  • 3 comments

This is where the vein blew, you can’t see but it’s also super swollen. Throughout this whole ordeal, I only cried once in the hospital (and a bit on my way to the ER the first time but mainly bc I was fed up/tired and didn’t think they’d help me). I just broke down. It hurt, it was scary seeing blood squirt out. I know now it wasn’t a big deal, but I was so out of it. I don’t even know what I’m saying I’m exhausted and crashing again. The IV fluids woke me up for a little but I’m coming down now. They actually made me feel so good I think suffering thru the pain to get the iv in was wayyy worth it. — #spoonie #spoonielife #spoonieprobs #spoonieproblems #spooniewarrior #spooniecommunity #chronicillness #chronicillnessawareness #chronicpain #chronicpainawareness #chronicpainwarrior #ibs #oralallergysyndrome #chronicmigraines #medicalmystery #chronicfatigue #fibromyalgia #fibrowarrior #pots #mentalhealthawareness #autismawareness #autismacceptance

Sam media on instagram
@chronically.sam
  • 25 likes
  • 3 comments

I swear I said no, not hoe. Gotta love voicecracks🤷‍♀️😂 Oh shit uh inspirational messages really aren’t my thing but I tried — I’ll probably delete this — These last couple days have been rough. It wasn’t the worst pain I’ve ever been in, but it was up there. And it was so hard mentally. Not knowing what they were injecting In me, not knowing why I was in pain, not knowing if I would need surgery. But y’know I survived I’m alright. You’ll survive this too — #spoonie #spoonielife #spoonieprobs #spoonieproblems #spooniewarrior #spooniecommunity #chronicillness #chronicillnessawareness #chronicpain #chronicpainawareness #chronicpainwarrior #ibs #oralallergysyndrome #chronicmigraines #medicalmystery #chronicfatigue #fibromyalgia #fibrowarrior #pots #mentalhealthawareness #autismawareness #autismacceptance

Happy Go Lucky Eventing media on instagram
@hgl.eventing
  • 50 likes
  • 1 comments

Fixing up my riding before I head off to Florida tomorrow! I'm so thrilled with how much my position has changed for the better in just a few weeks. I'm finally able to get into a good position for the jump and now I'm able to go back to a three point after without tipping and throwing Echo off balance. My flight leaves at 5 am tomorrow so I can have the rest of the day to ride before I completely pass out from being up for so way too long. I'm so excited to see Echo after being away from her for so long! I'll try to video her reaction to seeing me if shes not mad at me for leaving her at pony boot camp! 🙄🤣 So excited to spend my spring break in sunny Florida! #echoandelena #hearthorse #twohearts #draftcross #seattleslew #canadiansporthorse #dreamhorse #eventing #eventinghorse #showjumping #dressage #fei #sporthorse #jumpallthethings #usea #cwd #cwdriders #mattes #charelsowen #sergiograsso #lorenzini #dyonbridle #smartpak #franklinhorsesupply #chronicfatiguesyndrome #myalgicencephalomyelitisawareness #spooniesister #spooniewarrior #potssyndrome #fibromyalgia

Kiera media on instagram
@adventuresofaspooniezebra
  • 62 likes
  • 4 comments

I had a post all planned in my head for today, but instead I had a severe crash and am only now pulling out of it. Somedays everything explodes and the best you can do is hold on for dear life and hope you make it through. Unfortunately, my mom had an engagement that couldn’t be altered and had to leave me, luckily my nurse finally arrived and said she would stay with me while my mom left. She quickly got me accessed and got fluids running, got nausea meds into me, and sat until my body stabilized enough for her to safely leave me with my dad. Although it sucked, it was good for her to see me in a bad flare because she sometimes doesn’t understand the quality of my life. We discussed my current care and options for me to potentially get more “resources.” We aren’t sure what they will be yet, but she asked me to give her permission to request a palliative care consult, as well as a few other things. She is really hoping to be able to get me more care and better symptom management. I don’t know much more than that, but we shall see what comes of it. For now, I am checking out for the day and resting as much as possible. I appreciate you all and hope you all have a manageable day. #chronicillness #chronicpain #pwme #myalgicencephalomyelitis #gastroparesis #tubie #gjtube #portacath #mcas #mastcellactivationdisorder #ehlersdanlossyndrome #zebrastrong #zebrawarrior #dysautonomia #seizures #posturalorthostatictachycardiasyndrome #potsie #potsiestrong #potsielife #invisibleillness #spoonie #spoonielife #spoonieproblems #spooniesupport #spooniestrong #spooniewarrior #spooniecommunity #palliativecare

Lisa Ann Wetzel-Trainor media on instagram
@lisaanntrainor
  • 26 likes
  • 1 comments

..... snow day with my bae. 🌨 #pennytpoodle 🐩

Art by Jill Waldrep media on instagram
@artbyjillwaldrep
  • 29 likes
  • 3 comments

Tits Across Texas is coming together so beautifully! It’s a magical thing. Seeing this tiny seed of an idea in your head coming to fruition. I spent 2-3 hours scanning paintings and such today. I smiled the whole time. I’m so ready to show you all the book, the series, the whole damn thing!! I’m so proud of what’s happening. . . . Who’s ready to own a copy?!?! 📔

Jaiden Price media on instagram
@jaidenpricexoxo
  • 15 likes
  • 1 comments

My name is Shiranui and I am Jaiden's protector. I really take inspiration from the Okami series and am in the form of Amaterasu the wolf most of the time, though I'd much rather be called Shiranui.

Pheonix Rising Stories media on instagram
@pheonixrisingstories
  • 33 likes
  • 9 comments

My friends, thank you for sharing in this new space with me, one where I feel free to test the waters with my voice, free to even find my voice again after a dark period of time of feeling silenced. There are now just over one hundred of you that I do not know but am eager to get to know, and today, I would like to introduce myself to you. ⁣ ⁣ So this is me. Christina. Born almost thirty-one years ago into this beautiful, crazy, intense, confusing, overwhelming, painful, magnificent journey that is life. My home has always been here in beautiful British Columbia, but I am now slowly learning to make my true home a place that lies deeply rooted within myself. ⁣ ⁣ I am the eldest of three siblings and one beloved dog, who heartbreakingly left us this past December. My mother is Fijian-Indian and my father is Malaysian-Chinese, their mixing of cultures and skin tone and the resulting appreciation for all colours and shades and backgrounds in all people is the legacy they bestowed in their children and one that I love about us. ⁣ ⁣ Truthfully, I have spent most of my life, from as far back as I can remember as a child, steeped in self-loathing, self-deprecation, self-consciousness, and crippled by insecurities. Why and how this could be are two questions I am still trying to find the answers to. ⁣ ⁣ I know what it is to want to die, to not want to have to deal with my suffering anymore. It has been a long journey grappling with this part of me and my mental health, but it is actually one that I am proud of. Because the important thing to know about who I am today is that I am committed to life, a lover of life with the desire to begin living life joyfully. ⁣ ⁣ Simple things like an almond croissant, lighting a candle, wrapping myself in a plush blanket, warming my hands around a hot mug of tea, and being by the shoreside fill my heart with happy contentment. ⁣ ⁣ Floating in sensory deprivation tanks are an integral part of my healing journey and a true passion. I likely would have never tried floating had I not gotten sick. ⁣ ⁣ And that brings us to what many of you probably want to know more about. My health issues. ⁣ ⁣ (Con't below. I want to hear from you too!)

Ellen Christine media on instagram
@mysteryelles
  • 161 likes
  • 29 comments

Mental health chat because it is important and I feel like I have been lying to everyone First off (we probably all saw this one coming - I know I did) the psychiatrist during the last hospitalization diagnosed me with Medical PTSD. It was also recommended that I go to a residential program to start the process of dealing with the PTSD while also addressing the pain. Will get more into that later. Second, the reason I feel I have been lying to everyone is that things have really not been going as well as I portray, I have been struggling A LOT. Since coming home I have had 3 (that I am aware of) major meltdowns (crying, pinching, head banging - really dangerous) and have cried pretty much everyday. I don’t quite know what to say about that other than, I am just so tired. And not in a sense of needing rest or even needing a break anymore, the best way I can describe is that my soul is tired. For both of these situations I see how talking with a psychologist could be helpful, but what stops me from being open to seeing one is how things ended the last time. (In short I really trusted him (had been seeing him for 7 years) and he casually said some really damaging things - things that would come with a TW⚠️). Total side note but ties into the whole residential program (don’t have all the details on this but seems likely in my future), it was also highly recommended I get back to OT (I think mainly to address the ARFID but I’m not quite sure - because the list of things I eat is down to about 10 including Neocate and water). I don’t have full details on what the residential program would entail but my team agrees (and an NP who has personal experience with EDS) that a multi system large team approach is our best bet for pain control and quality of life. The problem I have with this approach is that the place that was suggested is out of state (actually on the other side of the country) and I would be left there alone (don’t think my parents have ever not accompanied me especially in a medical situation). That is actually my biggest hang up on the whole situation and with SM I am afraid I will shut down and nothing will be accomplished.

I am still ME media on instagram
@beibevega
  • 5 likes
  • 0 comments

I am confused!!! Zoella?????? @hotfire.makeup #iamstillme #instv. . . . . . . #fibro #fibrowarrior #spoonie #spooniewarrior #fibrosucks #fighter #fibrof *** #fibrowarrior #fightlikeagirl #survivor #spoonie #spoonietag #spoonieapproved # makeuphoarder #loveluna #celeryjuice - [ ]

Johan. Bergman media on instagram
@weightlift_bergman
  • 8 likes
  • 0 comments

Så här ser det ut när man tar sin proteshake i sin @relode efter ett benpass på gymmet. 😁 Dock var inte benböjen så trevlig idag eftersom det kändes som att vänstra knäet skulle kollapsa. Det knäet blir inte bättre tyvärr. Men inväntar nu att höra lite från vården. Men tjurskallig som man är körde man ändå sina 5x5 set av marklyft, benböj och raka mark. #fuckreumatism #starkreumatiker #relode #betterbodies #spooniewarrior #meningitissurvivor #officialbetterbodies #betterbodiesnordic #betterbodiesclothing #hydrocephalusawareness #bodymagazine

Katrina media on instagram
@thekatandthespoon
  • 27 likes
  • 5 comments

Okay I’m a bit sad this dress doesn’t fit anymore because it was super cute! Maybe I’ll figure out how to sew and make it a two piece 🤔 . . . . #healthylifestylechange #gettingfit #pcosweightloss #spooniewarrior #holistichealth #wasababestillababe #youcandoit

Grace, 23, 🇦🇺 media on instagram
@planet.migraine
  • 19 likes
  • 1 comments

I felt quite anxious yesterday, which I hadn’t felt for a while. I decided to do some meditation, and when my mind was quiet - this is the thought I had. We don’t know what’s going to happen in the future, and worrying about it doesn’t help. What if tomorrow is the best day I ever had and I spent the whole day today worrying about it potentially being bad? We already have limited energy - better to reserve it for something else if we can. A few meditations and breaks yesterday helped put me back into a healthy state of mind. Hoping today will be a great day! . . . . #wellnessjourney #healthylifestyle #spooniewarrior #chronicillnesswarrior #chronicmigraine #migraine #migrainewarrior #chronicillness #anxietyrelief #mentalhealth #spoonielife

 media on instagram
@mscrazylady
  • 26 likes
  • 0 comments

The long extensions I ordered from Amazon just got here. The colour match was almost perfect! Daniel is so confused why hair keeps arriving and I try to explain to him but he doesn’t get it. Anyone that is chronically ill and had had hair loss would understand this. It may look like I have lots of hair but it’s so thin from losing so much of it. My ponytail used to be an inch thick and now it feels like a quarter of that. Every time I brush my hair I lose clump and brushfulls and that adds up. It’s lovely my fiancé doesn’t notice these things and doesn’t think I need anything added to me but this is for me and about feeling better. Maybe I’ll decide I don’t need these pieces but having them in my tool box makes me feel good! . . . . . . #selfie #selfies #selfietime #selfiestagram #selfie _time #selfienation #spoonie #spoonies #spooniegirl #spoonielife #spooniestrong #spoonieproblems #spooniewarrior #spooniesisters #chronicallyill #chronicillness #chronicillnesslife #chronicillnesswarrior #chronicillnesswarriors #chronicillnesses #hair #hairs #weddinghair #extensions #curls #clipincurls

Chronic Love Club media on instagram
@chronicloveclub
  • 300 likes
  • 6 comments

😬🙌 • 📷: @stevint #chronicloveclub

🧚‍♀️Tasha🧚‍♀️ media on instagram
@just.a.few.moments
  • 22 likes
  • 2 comments

Guess who has been feeling human lately? ^^^that human right there^^^ Pain levels are still up and down and come monday when I'm back at work im sure the pain will be challenging but hey! I'm feeling good. • Life is a walk in the park, sadly that is Jurassic park a lot of the time 😂😂😂. But im feeling super happy and super confident at the moment. • #happy #spoonielife #invisibleillness #disability #disabilityblogger #blogger #illnessblogger #bloggerstyle #bloggers #bloggerlife #blogging #spoonieblog #spooniestuff #spoonieblogger #spoonielife #spooniewarrior #spooniecommunity #spoonieblogger #immunesystem #selfie #selflove #selfgrowth

My MS Ass Kickin Story media on instagram
@justagirlkickinmsass
  • 26 likes
  • 5 comments

Just not feeling today- my little buddy who doesn’t leave my side has the right idea. Let’s just stay cuddled up in warm soft blankets all day. I mean at least then, my symptoms aren’t exaggerated when I move...anyone else feel this way? Anyone else just stay out so to not have to deal with the symptoms more? #thismonsterwontwin #butyoudontlooksick #msmessedwiththewronggirl #msfighters #fuckyoums #ms #multiplesclerosis #findacure #invisibledisease #mssociety #autoimmunedisease #mswarrior #curems #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior #chroniclife #autoimmunedisease

Eva M. media on instagram
@eva_healingmyself
  • 13 likes
  • 4 comments

And anyone who made it through another day of struggle, you rock 👊🏼❤️ . #yourock #spooniewarrior #shoutout #nomonsanto #lentekriebels #quoteoftheday #growthroughshit

Vita Sciences media on instagram
@vitasciences
  • 21 likes
  • 1 comments

Relieve minor aches, pains, and muscle cramps with 'Relocane' by @vitasciences. . Order now with our 100% no questions asked money back guarantee return policy. . www.vitasciences.com . Order by phone: 1-877-212-7282 . #healthier #chronicfatigue #spooniewarrior#letsgethealthy#healthliving

Sam media on instagram
@chronically.sam
  • 36 likes
  • 9 comments

GOING HOMEEE — And we actually got some answers!! 😭💗🎉 — TMI warning. So uh.. yeah. My gut is fucked. Basically, there is 3ft of waste backed up. And all that diarrhea I’ve had is just mucus and water leaking around it. So uh.. yeah. I’ve got laxatives. can’t go to school for the rest of the week at least. It could be gastroparesis, we gotta see if clearing out my intestines helps or not. I’ll follow up w/ my family doctor. The pain could be bc the waste is causing sooo much pressure on the valve between my two intestines. — Gastroparesis fits my symptoms+I have pots too soo.. 9/10 that’s what it is! — #spoonie #spoonielife #spoonieprobs #spoonieproblems #spooniewarrior #spooniecommunity #chronicillness #chronicillnessawareness #chronicpain #chronicpainawareness #chronicpainwarrior #ibs #oralallergysyndrome #chronicmigraines #medicalmystery #chronicfatigue #fibromyalgia #fibrowarrior #pots #mentalhealthawareness #autismawareness #autismacceptance #gastroparesis

@duchess.f.auhuighan
  • 22 likes
  • 1 comments

Let's hang the welcome windchime! Wait, #amazongirl come do this... • 😳🤦🏽‍♀️🙄 • Are you telling me that "the giant" isn't even tall enough for this endeavor??? • WOW!!! THAT'S AMAZING!!!😱 It's the first time in her life she's ever felt "short"!😂🙌🏽🤣 #pnw #friendshome #newhome #movingin #gettingsettled #decorations #help #wtfisgoingon #imtooshort #featurethat #hilarious #geeksquad #shenanigans #funtimes #goodfriends #sistersinchrist #melaninqueen #spooniewarrior #twogeekgirlsinthecity

@twogeekgirlsinthecity
  • 11 likes
  • 1 comments

Let's hang the welcome windchime! Wait, #amazongirl come do this... • 😳🤦🏽‍♀️🙄 • Are you telling me that the giant isn't even tall enough for this endeavor??? • WOW!!! THAT'S AMAZING!!!😱 It's the first time in her life she's ever felt "short"!😂🙌🏽🤣 @therubear @duchess.f.auhuighan #pnw #friendshome #newhome #movingin #gettingsettled #decorations #help #stepstool #wtfisgoingon #imtooshort #featurethat #hilarious #geeksquad #shenanigans #funtimes #goodfriends #melaninqueen #spooniewarrior #twogeekgirlsinthecity

1000 Days, 1000 Steps media on instagram
@1000days1000steps
  • 20 likes
  • 1 comments

I’m laying on my bed thinking of how much I can simplify today. Right now that’s code for not wanting to face doing things, all the things. Letting myself go down that road eventually leads to depression, therefore I will do my bridges, get up, eat food, bathe, go to the food bank, clean, work on a sewing project... and now I am freaking myself out, so I will start with focusing on the first two or three things. . #gad #agoraphobia #ptsd #anxiety #depressionwarrior #arthritis #spooniewarrior #fibromyalgia #makinggoalshappen

Handii Solutions media on instagram
@handiihands
  • 12 likes
  • 0 comments

Are your fingers and wrists strong enough to hold your Baby? For Many people with RA disease and Arthritis this is impossible. ⠀ We can make this a possibility.⠀ Reduce the pain, increase your mobility and dexterity and hold your child by following a money back program. ⠀ Check it out in our profile link. 😉⠀⠀⠀⠀⠀
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#chronicillness #spoonie #chronicpain #ra#fybromyalgia #invisibleillness#autoimmunedisease #autoimmune#arthritis #spoonielife #chronicfatigue#inflammation #butyoudontlooksick#rheumatoidarthritis #itsokaynototbeokay#spoonies #chronicallyill#chronicfatiguesyndrome #jointpain#spoonieproblems #autoimmunewarrior#rawarrior #ralife #spooniewarrior#rheumatoid #arthritisawareness

Health|Supplements|Vitamins media on instagram
@luroothealth
  • 44 likes
  • 16 comments

There is one downside to working from home. When it snows and I can’t go to the office, I’m still required to work . So I made the best of it by cooking a huge pot of chicken soup. Healthy comfort food in this cold weather . What’s your favorite comfort food? . . P.S. Where is spring?? 🌸🌷💐🌺

The Unchargeables media on instagram
@theunchargeables
  • 149 likes
  • 6 comments

What battle did you win today? -CJ ------------------------------------------------ 🌟WIN unique chronic illness clothes from the Unchargeables shop! Link to giveaway in bio. ------------------------------------------------ #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior #chroniclife #autoimmunedisease #chronicillnessawareness #anxietywarrior #sicklife #disabledandcute #invisibleillnessawareness #disabled #zebrastrong #spooniesunite #raiseawareness #butyoudontlooksick #disabilityawareness #invisibledisability #chronicpainwarrior . [Image description: Against a black background is a white skull and crossbones. The crossbones have been replaced with spoons to represent the spoonie community. A white banner underneath has black text on it reading 'Chronic Illness Warrior.']

My Holy Brain media on instagram
@myholybrain
  • 16 likes
  • 2 comments

I'm going back to sleep......pfffttt